Very interesting and scary! I may have a trip to Mayo in my near future, I will ask them about it. Thank you very much for the info!
Member has chosen to not make this information public.
Member not yet following any Groups.
Member not yet following any Pages.
Very helpful reply, thank you @lisab62 ! I only live 4 hours away from Rochester Mayo Clinic. As soon as I can wrap my head around this diagnosis I may have to look into making a trip to see a cardiologist there. I feel I’ve just been left hanging in limbo without enough information. I will start a journal as you recommended. Your medication doses are higher than mine, I suppose they may modify them as needed. Thank you for your prayers!
Happy to have found this discussion. I’m a 57 year old female and I have been having very painful chest pains that radiate up to my jaw for about 1 1/2 years. Every time I go to the emergency room they run EKG’s and they show different info each time, but the doctors always tell me I’m not having a heart attack and that with the severity of my pain it is more than likely a gall stone I’m passing. Had my gallbladder removed years ago. In January the pain of these attacks intensified, drops me to my knees and I can barely talk they are so excruciating. I’ve been to the ER about 7 times since the first of the year, 2 of those times by ambulance. I have had stress tests that don’t bring the attacks on so they tell me it’s not my heart. I even had one of these attacks while in the hospital for another issue and my blood pressure went up to 220 over 115, the EKG showed I wasn’t having a heart attack again, so they told me it must be a panic attack. I knew with the pain radiating up to my jaw that it was likely my heart, but no one would take me seriously. I finally went in to talk to my cardiologist and told her I would like further testing to rule out my heart. She gave me a prescription for Nitroglycerin and agreed to do an angiogram, which I had yesterday. She asked me during the procedure if I was having chest pain, which I wasn’t. After the procedure she met with my husband and told him I have variant angina/prinzmetal angina, apparently my arteries went into spasm during the procedure and she injected nitroglycerin, which stopped the spasms. They were still getting me back to my room so I wasn’t able to talk to her. Later a nurse came in and explained that what I have is rare and I asked if it can be fatal and can I have a heart attack. She replied yes to both questions. They put me on Metoprolol and Isosorbide Mononitrate (giving me a headache). I also have 5 possibly 6 autoimmune conditions: Lupus, Rheumatoid Arthritis, Autoimmune Hepatitis (just diagnosed a couple months ago), Sjogren’s Syndrome and Hashimoto’s. I’m on many medications and I have no idea if these conditions are in any way related to prenzmetal angina, I don’t think so. Anyway, the only info I have been given is the information from the nurse. I have an appointment scheduled with the cardiologist in a month, but until then I only have google to answer my questions and fears. I have to say I’m very scared of this condition, and I sit on pins and needles just waiting for the next attack. Do you all find that the medications I’ve been put on are appropriate and do they reduce the severity and frequency of these attacks? Thank you in advance for your advice and answers.