Did you feel any improvement in breathing afterwards?
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My pulmonologist has informed me that I have a section of my mid/lower right lung with atelectasis (which will not recover). He has suggested possible lobectomy to remove this portion as it is a breeding ground for infections. Anyone had this done or have similar situation?
Hi, I’m new to the forum. I was diagnosed with MAC about 11 years ago, at the age of 39, after a chest x-ray for suspected pneumonia. They found nodules on my lungs. I went for about 5 years of pulmonologists “just watching it”… I tried the MAC prescription protocol 3 times and could not tolerate it, last time, put me in hospital 5 days with acute kidney failure. I’ve been through 4 pulmonologists and an Infectious Disease clinic. My latest pulmonologist did bronch, CT scan and blood word on Jan 13 and found I had bronchiectasis and multiple additional bacteria and fungus in my right lung. I have a small portion of my middle right lobe that is “dead.” I am guessing that associates the MAC and bronchiectasis. I am now at a point where they are sending me to another Infectious Disease specialist and have discussed removing that portion of my right lobe that is “not functioning.” I’m looking for anyone in a similar situation that has tried the protocol (ethambutol, rifampin, and azithromycin that could not tolerate it to see what your 2nd and further options were.