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Posts (15)

May 26, 2017 · Possible seropositive RA diagnosis in Autoimmune Diseases

Sounds like we may have the same thing. I have the RA antibody in my system but it has not been activated. However, it may be in the future. The major thing I have is autoimmune related to Hyperthyroidism and high inflammation. My hands (inside palms), feet (bottoms), eyes, throat, etc. all turn red after certain foods, I’ve found so I have to eliminate goitrens, gluten, soy, dairy, etc. Also, my hair is falling out too. I’ll have to review my lab results but mostly everything was negative and I’m normal. I have adrenal fatigue and am taking Taurine (1000mg) daily. I’ll be meeting with a doctor in early June in integrative health as a functional practitioner, who is ranked as one of the top specialists for depression and thyroid. I look forward to working with her. It was almost impossible to get in but I started with a nurse and her referral, and started working with this doctor’s staff who were working for her while in residency. The one I had left to complete her boards so I was able to get right in to see her.

May 23, 2017 · Lichen Sclerosus in Autoimmune Diseases

Glad you were able to find the right specialists and treatments. My condition is not so much the burning and itching, but just yeast growth. Even a small glass of natural apple cider will create a “branching effect” that migrates up the fallopian tubes. So I have a condition ripe for candida growth in my body. I’ve been fighting this for a year on strict diets, natural foods, no to low sugar substitutes like stevia, etc., apple cider vinegar, fermented foods, etc. and managed to get it down somewhat. However, I cannot live without antifungals and probiotics and use them daily. Eventually I’ll have to contact a candida specialist to find out what exactly will kill this growth. I appreciated your comments regarding Lichen Sclerosus and will definitely research that a little more.

May 23, 2017 · Undiagnosed auto immune disease, put on Leflunomide in Autoimmune Diseases

No, I haven’t. But it just seems like the combination of adrenal fatigue, autoimmune and thyroid disease are actually getting worse for me with supplements which have been recommended. What is mast cell activation syndrome all about?

May 22, 2017 · Undiagnosed auto immune disease, put on Leflunomide in Autoimmune Diseases

Vegetarian diets are a little tricky because of the protein requirements by the body. Just so you know, I can’t live without meat. My body craves it – however, what I just did was to buy Dr. Jim Mercola’s latest book called “Fat for Fuel”. He discusses a well balanced meal in which proteins are measured and the body switches over and begins to burn fat instead of carbs (sugar). You get more cleaning burning of the body to prevent metabolic resistance when you switch to meat proteins and low net carbs, but he always recommends that you measure the amount of proteins. Because the low carb diets out there can do a lot of damage. So he also sells a nutritional “tracker” in which you determine your meals daily with the right amounts. I’m not saying you should do this but by all means, switch out of gluten eating and at least soy. I also found that dairy really destroys my system also. I love coconut yogurt! Almond yogurt is just OK. Eventually your body switches over from carb burning to fat burning, but it can take up to a few weeks or months. That is my game plan, to get my body and system working efficiently. Then you develop your brain mitochondria and repair cells, get organs nourished and replenished. Also, I will not eat regular foods from the super market. I shop 100% organic and it has made all of the difference in the world! There is no comparison and it is worth every penny. Organic lasts longer, tastes much better and your body detoxes and feels great in a relatively short period of time. Also, I’ve been gluten-free for years but am now autoimmune so I’m not eating much in the way of GF; you have to give up wheat. Wheat destroys your system period. It is genetically engineered and deserves no place in our culture. It’s a “fake” grain. Processed grains, too, do not work well so just about any flour (whether grainless or otherwise) is tough on the system if it’s processed, because it disturbs the “sugar” addiction and that all comes alive again. We are addicts when it comes to processed foods or sugars. We love our pizzas, hot pockets, cakes, candy, pie, baked goods, crackers, etc. But these things are really tough on the system because they elevate blood sugar so badly and are hard to process. You can try root cause analysis by trying to remove one thing at a time and seeing how that goes. But start with gluten and soy — then do dairy to eliminate casein. Those 3 are the major culprits unless the dairy is raw and unfiltered, like raw grass-fed butter which I’ve heard is excellent. Also, kefir is excellent for the body as well as fermented foods (sauerkraut, kimchi), organic vegetables that do not include many nightshades (potatoes, peppers, eggplant, radish, cabbage, etc.) which I have occasionally, etc. Also, I only cook cruciferous vegetables (never raw) which are broccoli, cauliflower, brussel sprouts, kale, etc. because they cause inflammation. I have an autoimmune condition in which I have to watch everything I eat. But 80% of your immune system is located in the gut, I’ve heard, so unless you address your diet, you might struggle for quite some time without the added energy to figure out the cause. The gut is everything, they say, and so the diet goes. I don’t listen to a doctor for these things; I go out online, take webinars, listen to nutritional experts, go to a naturopath and integrative functional practitioner medical doctor and skip the typical “doctor” visits in which your primary doctor only knows how to treat your systems with a medication. You have to become the expert.

May 21, 2017 · Undiagnosed auto immune disease, put on Leflunomide in Autoimmune Diseases

Hi Lisa, although I’m no expert, I also have an undiagnosed autoimmune disorder of some kind, along with adrenal fatigue. When I shifted to an “Autoimmune Paleo” diet, it truly helped with the inflammation. My inner palms, face and feet were burning after consuming certain foods, or under stress. Dr. Izabella Wentz, Pharmacist, discusses it online as a thyroid expert. It’s called “Root Cause Autoimmune” diet. It includes most organic vegetables, fermented foods and organic meats with low-glycemic organic fruits. You are not allowed dairy (I still have an organic egg once or twice per week), grains, legumes, nightshades, nuts, seeds, sugar or seaweed. You are able to have coconut or brown shirataki yam noodles. Starting with the diet really brings the stress down of symptoms so that you can manage them better. But again, that’s what I did and not sure your situation is equal to mine. I’m also going to look into testing for amyloidosis, based on Karl’s comments and encouragement in previous posts. But tackling diet, in my opinion, is the first thing to do if an autoimmune situation is detected. Without diet protection, everything just begins to go down a notch. In the interim, you can have more labs run, more results and then subsequently and hopefully, some helpful supplements or medications. Amy

May 19, 2017 · Autoimmune diagnosing problem in Autoimmune Diseases

Good for you, John. So glad you found true experts at Mayo, and have been learning about your disease. I’ll definitely look into this, the test you recommended (I see my functional doctor on June 5th) and we’ll pursue this as a possible event of concern. God bless!

May 19, 2017 · Autoimmune diagnosing problem in Autoimmune Diseases

Thanks so much, I’ll check these out. So nice to know about the options and so especially pleased with your personal efforts to help the senior community. I myself was a caregiver for quite awhile and one of the loveliest couples was a pastor of a church and his wife — both needed assistance. After this temporary work, I went back into Corporate America as a top executive making almost $100K. The dichotomy is amusing but everyone should make a contribution in life like this. It certainly sounds like you have!! Thanks so much for helping me, Karl and the senior community. They deserve our utmost respect. Amy

May 19, 2017 · Autoimmune diagnosing problem in Autoimmune Diseases

Sorry, I thought you were speaking about amyloidosis in which these proteins accumulate in organs such as heart, kidneys, the nervous system or intestinal tract. I’ll take a look into senior services, as I had entertained the idea previously but not fully until you brought it up. I’ll be 65 in October and if I have to wait until then, that’s not an issue. Anyway, I so appreciate your guidance as I will seek the tests you have mentioned and we will definitely look into those issues. Thank you,