About

Member has chosen to not make this information public.

Pages

Member not yet following any Pages.

Posts (4)

Aug 14, 2017 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

Today I went to see a naturopathic doctor as I was getting nowhere with my GP and still waiting to see a Gastrointerologist. Diagnosed with panniculitis mesentery after a 3D CT in October 2017. Decided to wait and see if after a 5 month holiday my spleen enlargement, my liver lesions and my enlarged lymph nodes in my mesentery changed. I took ibufrophen for pain and antinflammatory but got a very itchy rash. Took Gravol ginger tabs for nausea, Maxeran if it was bad. Morphine if the pain got really bad. The GP had diagnosed me with possible but not probable lymphoma. No biopsy was done.
When I returned in April I had another 3D CT done. My liver was the same, my spleen was still enlarged but my lymph nodes had decreased in size. My doctor rescinded my diagnosois but didn’t feel that further Rx was necessary. It is August and I have had recurring pain and nausea.
The naturopath read my CT results and blood work results as well as the internet write ups on PM. We talked about symptoms and he did a physical exam of my abdomen.He said we would try Naltrexone 1.5mg to begin right away as there have been good results lately with this med according to National Organization of Rare Diseases research. I take it at bedtime and we will see in 2 weeks if there is a need to increase the dosage and how my symptoms react. Fingers crossed.

May 31, 2017 · shingles in Autoimmune Diseases

I have shingles on an ongoing basis. Dr ordered Acyclovir 400 mg, 1 tab 2 times daily once I feel the tingling. Homepathic Rx works as well using L-Lysine and Vitamin C. Ask your health food store or look it up on line. I had the shingles shot but don’t go there it makes it worse at least mine did.

May 11, 2017 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

I sent a post yesterday. Not sure if my MP is autoimmune. I do have an enlarged spleen, my mesenteric (small intestine core)lymph nodes were enlarged but since my diagnosois I have been taking an anti inflammatory. The pain is usually in my mid section but can be in my spleen area or in my right liver area since I have hypo attenutatinging lesions on my liver. Nausea is intermittent with loss of appetite due to hyersensitive smell.
After 5 months south in Mexico my enhanced CT scan showed reduced lymph nodes but liver and spleen remain the same. I take Aleve twice a day for inflammation and pain.I live in western Canada. My family doctor doesn’t really understand it so isn’t willing to try prednisone. I am in limbo for now.

May 11, 2017 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

Thanks for the reply. Pain is managed with Tylenol. Today I am having a pain in my right upper quadrant so will need to take T3