Today I went to see a naturopathic doctor as I was getting nowhere with my GP and still waiting to see a Gastrointerologist. Diagnosed with panniculitis mesentery after a 3D CT in October 2017. Decided to wait and see if after a 5 month holiday my spleen enlargement, my liver lesions and my enlarged lymph nodes in my mesentery changed. I took ibufrophen for pain and antinflammatory but got a very itchy rash. Took Gravol ginger tabs for nausea, Maxeran if it was bad. Morphine if the pain got really bad. The GP had diagnosed me with possible but not probable lymphoma. No biopsy was done.
When I returned in April I had another 3D CT done. My liver was the same, my spleen was still enlarged but my lymph nodes had decreased in size. My doctor rescinded my diagnosois but didn’t feel that further Rx was necessary. It is August and I have had recurring pain and nausea.
The naturopath read my CT results and blood work results as well as the internet write ups on PM. We talked about symptoms and he did a physical exam of my abdomen.He said we would try Naltrexone 1.5mg to begin right away as there have been good results lately with this med according to National Organization of Rare Diseases research. I take it at bedtime and we will see in 2 weeks if there is a need to increase the dosage and how my symptoms react. Fingers crossed.