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May 10, 2017 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

Hi, I have been fighting this severe abdominal pain that tends to stay near my belly button and then likes to radiate left. Some days its manageable and some days I am literally doubled up waiting to die. I recently got a job at a hospital with awesome benefits so I starting talking to every doctor I could find as I support them all. Various pain management drugs were tried with little effect so I found a GI who scoped me from both ends and found nothing. Then they ordered a CT and wham there it was. I was diagnosed with mesenteric panniculitis but finding what is best to kill the pain is a battle still raging. They started me on 40mg of prednisone which works great but is causing other issues such as fast heart rate and elevated blood pressure not to mention makes me moody as hell. 10 years ago I was diagnosed with prostate cancer at age 38. I already have high blood pressure and I am also a prostate cancer survivor. My doctor is not all that versed on this condition and both the GI docs here at the hospital seem also not to know much about it. My doctor has tried other things but nothing works like the prednisone. I just can’t handle the side effects. I wish I could find someone locally who has a good understanding of this disease and could help me find a way to cut out the pain. I was quite overweight and have been on a diet to the point that I have dropped 30 pounds but the pain some days continues to be unbearable. Starting to get frustrated.