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Dec 30, 2018 · PMR strength in Autoimmune Diseases

Hi my name is Roland I have not been replying for some times now, but keep reading the PMR issues. Yes I have had PMR now for 20 months. I started with 20mg & went down to 5mg in 12 months. Then slowly down to 2-1/2mg for a couple of months I thought I was doing pretty good with that, then I noticed that the discomfort increased both wrist & fingers then my neck & shoulders I had to go back up to 5mg. Sounds familiar doesn't it, all typical with PMR patient's. I still work out at the gym 4 days a week & 2 days ago 6 hours on the shovel (snow removal). Yes I feel it but try to keep my mind off of it & that seems to work. John is as a good mentor he has done a lot of research on the auto immune disease he is the pro on it. Doctors cannot help you much with PMR & the dose of prednisone to take. MY Dr. says only the patient knows how much pain he or she can tolerate before upping or decreasing the dosage. Not much help I know but PMR has a mind of it's own it will leave you body when it feels like it. Hang in there it will get better.

May 6, 2018 · PMR Anyone? in Autoimmune Diseases

Hi my name is Roland & I have PMR I have had it for 15 months. I know you are frustrated about not being to get rid of your PMR. Now I don't know what your Dr. told you but there is no cure for PMR just pain treatment & try to work out every day. This is an autoimmune disease & it is suppose to go away by itself they say 1 to 3 years & maybe even a reoccurrence. I started with 20 mg/day of prednisone & am now stuck on 5 mg/day. My pain went away but right now it is in all my finger joints a little uncomfortable but it doesn't stop me from doing anything that I wish to do. Now with prednisone there are possible side effects & of course with all medications one takes. You have to start on a dose which controls your pain & very slowly decrease the dosage. You see with steroids taking an oral dose your body is tricked on not making it so you just cannot stop taking it all at once you have to wean yourself off the stuff. John Bishop is a good mentor on the PMR not a Dr. but a person that has had it so he is very knowledgeable on that subject. Don't give up your pain is treatable & along with plenty of exercise every day you should be okay.

Apr 30, 2018 · Searching for Answers With Others: Meet @johnbishop in About Connect: Who, What & Why

Yes I do watch it very closely. I have had no problems on prednisone & no visible side effects. I can put up with a little discomfort but if it gets to bad I can always up the dosage not that I would want to but quality of life does matter.

Apr 29, 2018 · Searching for Answers With Others: Meet @johnbishop in About Connect: Who, What & Why

John thanks for your efforts, I think I know what keeps you doing what you do & that is a positive attitude which is what you pass on to people that not only have PMR but other autoimmune problems. Now I have not shaken my PMR I am still on 5mg/day would like to decrease but I still have effects of PMR mainly in all my finger knuckle joints. The rest of my joints in my body are doing well. It now has been 14 months since I came down with PMR started with 20mg now down to 5 mg & again with no side effects that I can tell but then who knows what is lingering inside my body. Am still active riding my bicycle, motorcycle, gym work 4 days a week & spending a lot of time at the police dept. as a volunteer police. The secrete with this PMR is keep active & busy. Again John thanks for your inputs.

Mar 10, 2018 · PMR Anyone? in Autoimmune Diseases

Yes this is nasty but we have to keep going not give up. Another thing that I do is keep busy that is besides my exercise program. I am very involved with our local PD, Being a small department they appreciate the help I have been with them for 6 years I put in around 40 hours per month sometimes more. Keep moving is the secrete. The only joints that really bother me now is the fingers & wrist especially in the morning sounds familiar doesn't it, but it doesn't bother me I keep my mind busy & try to ignore the discomfort. At least it is not like it was a year ago thanks to your support.

Mar 9, 2018 · PMR Anyone? in Autoimmune Diseases

Hi celebrant my name is Roland. I was diagnosed with PMR 1 year ago (March 2017) I started with 20 mg of pred. a slow process but one year later I am down to 5 mg/day I still have PMR but it is under control. The secret to all of this is stay positive & plenty of exercise. Do lot of walking & hit the gym as you do have to exercise those aching joints like I said it is not easy but you have to do it. My Dr. told me that only the person affected by this disease knows how he or she feels & how much pain one can tolerate before starting to tapering down from the pred. Go slow on the tapering only 1 to 2 mg at a time for at least a month if you feel okay try another 1 mg. You will know if it is to much if so increase it to your last dose. I have been on 5 mg now for 5 weeks & I know I am not ready to cut back any further right now. Like I said only the person affected knows how much pain one can tolerate before hitting the next threshold of cutting back. Another thing watch is the weight gain being on pred. myself I am lucky I have not gained any weight in the year that I have been on pred. maybe it is because of my exercise program I don't know. I eat the same foods as before & I do have my red wine every night. Good luck with all of this.

Jan 24, 2018 · Polymyalgia rheumatica in Autoimmune Diseases

Well tingling in hands & arms are normal for older people why I don’t know but my Dr. said it is common as long as it goes away when changing sleeping positions so no need to worry about it & it is not PMR related.

Jan 24, 2018 · Polymyalgia rheumatica in Autoimmune Diseases

Yes that is true it goes dormant for how long well that depends on our bodies. Everybody that has or have had PMR are different I think our metabolism are all different some people put on weight because of the prednisone & then there is the pain. Now listening to all who are on the Mayo support group all are different except of the joint pains. I consider myself very lucky I’ll tell you why I am 76 I am 5’7′ tall, I have had PMR since Feb or March of 2017. I started on 20 mg of Pred. now down to 7.5 mg/day. I have never put on weight which is strange, I also am an avid gym person maybe it has something to do with it. I do take 5000 mg of D3/day of course at my age I am on BP medication I am also a celiac intolerance person I have been for 16 years but doing well with it. Like I said at the beginning there are no 2 cases alike. As far as weaning off the Pred. take it slowly even if you do not feel any pain that doesn’t mean that you can drop a mg or 2. Myself as I said I am on 7.5 mg/day. Now I will attempt to drop another mg or so at the beginning of Feb. if it works good but if it doesn’t I will increase my body will tell me if I am ready to decrease my Pred. Also I have not had any reactions to the Pred. so I do have an advantage over most but I also have to be careful. Mostly exercise is very important & I mean real exercise my down hill skiing has not bothered me at all. Good luck to all who have to cope with this annoying auto. disease.