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Posts (77)

Fri, Apr 17 8:07am · Polymyalgia Rheumatica (PMR): Meet others & Share Your Story in Polymyalgia Rheumatica (PMR)

Hi Richard my name is Roland & what you went through & now going through it was the same with me. I will be turning 79 in a few weeks & my PMR came on 4 years ago in my shoulders, hips & neck started with 20 mg of pred. & tapered off. Now here it is 4 years later & I am on 1 mg/day due to my wrist & fingers hurting especially in the AM. I also was & still am in good shape working out, snow skiing riding my bike & gym work. Yes a strange beast but seeing there is at the moment no cure the only thing we can do is rely on prednisone & most important working out it helps not only staying in shape but it is much easier to deal with the pain.

Tue, Mar 10 8:47am · Polymyalgia Rheumatica (PMR): Meet others & Share Your Story in Polymyalgia Rheumatica (PMR)

Yes John I started on Qunol liquid Turmeric 1000mg/day 2 weeks ago & it does help

Tue, Mar 10 8:45am · Polymyalgia Rheumatica (PMR): Meet others & Share Your Story in Polymyalgia Rheumatica (PMR)

That is typical with PMR yes you loose your strength I use to bench press 120 lbs & when I came down with PMP it was hard to do 40 lbs now I am back up to 80 lbs don't despair it will get better. Like I had said in my previous post try pull downs.

Tue, Mar 10 8:35am · Polymyalgia Rheumatica (PMR): Meet others & Share Your Story in Polymyalgia Rheumatica (PMR)

Sorry it took so long for me to answer your post worked all day yesterday. To answer your question no I do not have any special diet but I am gluten sensitive so I do try to stay away from foods or beverage that contain gluten. I do not take methotrexate. Now along with exercise I found that if you stay busy during the day it keeps your mind off of your pain or discomfort try it & in the evening you will wonder you got through the day without the discomfort. I also never experienced any muscles pain. Now as I had said it is now mostly in my finger & wrist joints. At the gym it is hard to do any bench presses as it is compressing the wrist joint so I do pull downs & no pain associated with that work. Try it.

Sun, Mar 8 12:34pm · Polymyalgia Rheumatica (PMR): Meet others & Share Your Story in Polymyalgia Rheumatica (PMR)

Hi my name is Roland yes PMR is a beast & where you are experiencing pain & discomfort is normal. Now I have had it for 4 years now & am stuck on pred. 2.5 mg/day, as far as going away yes they say 1 to 3 years but here I am at 4 years. My pain is now down to both wrist & fingers not bad considering that hips & shoulders are now fine. Mayo says that up to 40% of the people that have PMR never goes away not to encouraging but life goes on . I have started taking 15 ML of liquid turmeric 1000 mg a day & it does help. Turmeric in liquid form as any liquid is quickly absorbed in ones system vs powder or pill. Qunol is the product name which you can get at Wal-Mart or Costco. Also plenty of exercise is recommended I do my gym work in the morning yes getting out of bed in the morning well I don't have to tell you it is not good. Now I am 79 yrs young still motorcycling & snow skiing. Keeping going is the secret. Best of luck with your PMR.

Oct 13, 2019 · PMR Anyone? in Polymyalgia Rheumatica (PMR)

Hi Pauletta I to have had PMR going on 4 years now I started on 20 mg of prednisone & have worked myself down to 2.5 mg/day & on occasions depending on the weather conditions & have to pop a 5 mg. I also have heard that some patients never go into remission not to encouraging I must say. The secrete is keep active I myself do a lot of gym work I also am a cyclist & in the winter months I down hill ski I also enjoy my motorcycle. My blood work up is good but still have pain in my fingers but not the thumbs strange also pain in my wrist my shoulders & neck. Oh I am also 78 & refuse to give up staying active is the secret we must work through our ailments. Roland

Sep 1, 2019 · How to address PMR pain while decreasing prednisone in Polymyalgia Rheumatica (PMR)

Hi John this is Roland it has been a while since I have been on but have been following all the post. Now to all who have PMR like you it is a struggle well not exactly. To all who follow the Mayo web site on PMR. first of all I have had it for 3.6 years. The symptoms are all the same along with my hips, shoulders, wrist & fingers. I started on 20 mg of prednisone down to 10 then 5 an then well it is how do you feel in decreasing the dosage. Well it is up to how one's feel's I am still on 2.5 mg. & depending on the weather it could be 5 mg. Now to all the DR's does not know how much discomfort you can tolerate so It is up to the individual on how much pred. you should take, now my pain threshold is moderate so I can tolerate some discomfort if not more. Now I am 78 yrs old I still bicycle, go to the gym, motorcycle & yes in the winter downhill ski. I refuse to let this this autoimmune disease put an end to my life. Folks with PMR don't let it get you down like it did me in my early stages. Give it hell & keep it going. OH by the way hips are ok but shoulders, wrist & 8 fingers & neck still an issue but I will over come it I hope. God bless everyone with the issue.

Feb 6, 2019 · PMR - Decreased prednisone and pain returned in Polymyalgia Rheumatica (PMR)

Well noosat no-one really enjoys taking any type of medication but lets face it we need medication to enjoy some quality of life. Prednisone at a low dose is not to bad yes there could be side effects but overall is isn't to bad. Yes try reducing at a slow rate & if it doesn't work up it. As I had said on one of my replies keep active it helps take your mind off the discomforting pain.