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Jul 29, 2017 · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain
How do I stop receiving – stop following – I cant handle the email load????
@sheabebabe, After 32 years of back pain, one double level fusion and one recent very helpful disc replacement in Barcelona, I have found that over the years a cocktail of pain medicines taken at different times of the day work better. Daypro anti inflammatory (eat food with anti-inflammatories) as well as Flector and/or Lidoderm Patches at bedtime. Norotin or Lyrica turn down the amplification on nerve pain. I had been on a high level narcotic even stronger than oxy for 6 years now. Starting to cut down notably. Yet, I consume Flax Seed and Psyllium Husks (14g ea) to keep digestive track going. That cocktail works for me. Also if you have a hard time sleeping, as the Dr. for something to help. Even a hot bath for 10 minutes before bedtime can help. On the non-prescription side BioFreeze aerosol spray is fantastic at tricking the brain for a while to pay less attention to the pain. I also have done acupuncture with electro-stem–stimulation that helps break down tight muscles you cant reach – like around the hip bone line. Funny how I found the “spikey ball” they come in 2 and 3 inch sizes from Appleround and others work into the muscle deeply and really work well – no drugs. Deep massage as well. IceyHot Lidicane is also a non-prescription that helps pull the edge off of tight muscles. There are a few select places in the US to get a new disc replacement. Mayo is one of them. Texas Back Institute is another. Hundreds of disc replacement of the lumbar spine should be a minimum requirement. I went where they specialized in the Spinal Kinetics M6-L. Good luck.
I am sorry to hear you are going through such pain. This may that may take a while. I have had back pain for 32 years and solved it by 80% recently and over 95% nerve pain is gone – 4 months post-op. A key message here is you need to be your own best advocate to become more knowledgeable and be forward thinking on your approach. Its been my personal experience from a double level fusion performed from the back, (posterior) that this is a major event. If what I am reading is accurate, you indicate a double level “disc replacement” was implanted – which is commonly done from the front, (anterior approach) – next to the belly button. I had a double level fusion 12 years ago and that wears out the disc above and I had an artificial disc replacement (ADR) on top of the old fusion in December 2017 and I am doing very well. My point is posterior surgery is a major event and that may be the major source of inflammatory pain. Also in perspective, most ADR’s add 1/2″ each, so you may be 1″ taller. This causes muscles to be stretched. I read in an international ADR blog that a 3 level ADR case, it took six months for hamstrings to finally adapt.
A discussion with your Doctor about the necessity of ongoing Physical Therapy (PT) (which will include stretching) and medications like an anti-inflammatory (I.E. prescriptions Daypro 600mg x 2 a day) and pain medication (like Lyrica starter dost 50mg x 3 a day, may need to be increased to 75mg dose), perhaps muscle relaxers like Baclofen (use very limited and cautiously) and also 12 hour patches like *Lidoderm 5% (helps tame and dull the pain surface area) or *Flector (very effective in area specific treatment). You may also find relief from Biofreeze – a cool gel that helps trick the nerve receptors to pay more attention to the cool sensation than the pain, especially helpful at night. I definitely prefer the aerosol spray so you can reach around to apply easier – and you avoid getting it on your hands – avoids inadvertently getting it in your eye by rubbing. You can get the aerosol on line at Amazon for $12. Lidoderm 4% cream and roll on is available at the pain section at the pharmacy – the roll on is easier to apply. Off the shelf IcyHot has a cream that is both Lidoderm 4% and a tinge of hot (I like this). If appropriate, CVS has a Capsaicin (pepper plant hot) and I recommend only the roll on.
A key point here is stiffness and tightness WILL cause pain and PT approved daily stretching are important mitigation techniques – again as agreed and prescribed by your PT. Exercises to ask your PT about would be use of a gym recumbent bike may help circulation and pain relief. You might be surprised how effective this could be – but I sat down with my surgeon with a list of activities I wanted to do and asked when it was okay to do them. Walking was his number #1 recommendation – daily. I went to Barcelona for my surgery – was up and walking in 3 days, walked 15 miles the two weeks post-op literally as a tourist. #2 was daily stretching – I have a rope with a loop end that pops over the top of a door and a foot sleeve (like a kink-shop product) that allows me to easily stretch instantly and its easy to travel with. #3 Bosu ball – stand on top and stretch back and fourth (have something solid to hold on to), #4 PT; and #5 recumbent bike. In ending, every patient must be their own best advocate and asking questions off a list and writing down the answers is wise. I refer back to these notes often in those first few months.
The fact is this is going to take time. The good news is that ARD’s give you a major advantage in recovery. One last comment is that ‘at some point’ – as PT approved) stomach and back muscles should be strengthened – for various reasons, but specifically because most ADR’s can allow hyper extension of facet joints as the ADR is like a ball bearing and moves faster – not like a regular ‘tension in turning’ natural disc. So when your torso turns left or right the facet joints at the ADR level move first and may suffer arthritic friction. Good muscle health in the torso core help mitigate that effect. Back surgery is not a solution, its an attempt at mitigation. In most instances, you will need to stay on your game in exercise. If the pain is disruptive to your life, there are procedures like RF Ablation that burn the nerves. This can last for around a year – and allow a cut back of meds. Right now at only 4 1/2 weeks, you are suffering post surgical pain and have a road ahead. RF Ablation is a consideration a good bit down the road “if” its even appropriate. One other consideration is when on so many meds, consideration of liver help supplements Silymarin are likely wise.
My final comment to back pain suffering folks also reading this is that are consideration treatment is to stay on line and dig. After 32 years of pain and every treatment I could find, I spent $29k and went to Barcelona to Dr. Clavel a world top spine surgeon because I wanted a specific model ADR from Spinal Kinetics M6-L. In my situation, it was best. Whether by appeal I will get any money back is unknown. Most cant or wont do that. Places like Mayo are a consideration. What I found out was that the artificial disc (ADR) was invented in Germany in the mid-80s for a professional athlete. Since then its the epicenter of excellence on the subject. My neurosurgeon had performed over 1700 of these procedures (1200 neck 70% double level and 550 lumbar).
Meds: *The Lidoderm and Flector patches may be refused by your insurer. I found that having a doctor willing to appeal this to the insurer for me worked. I did not go to my surgeon for this, I went to my regular internist. There is a difference in liquid and roll ons mentioned above and the patches are what I prefer to get all night long – good night sleep – protection. Creams and roll on’s seem to last around 4 hours or so.
You went through a major double procedure. The procedure to remove the hardware was a major event. I hope you fell better with more knowledge to consider. The probability to heal well is in your hands. Be your own best advocate first.
I read your January 17, 2012 post about your fusion from 12 years prior and on Fentynal patches. I found that every 10 years the next level disc wears out due to the friction from the two fused bones – as you move, etc. After long research of my 12 year mark after double level fusion surgery (now 32 year of pain) my research found that an “artificial disc” was the best solution. I flew to Barcelona to a world neurosurgeon to have the *Spinal Kinetics M6-L implanted on top of my L4-L5 L5-S1 fusion at level L3-L4. This was in December 2016 and I am fantastic. I paid $29k and am trying to get reimbursement from insurance. I see that Mayo offers an artificial disc, according to the posting by another patient. My point is, the right decision was what I refer to as one of the top ten best decisions I made in my life.
I am attempting to find out if you went to Mayo and elected an artificial disc? If so, what brand/model? How are you doing, meds, etc.
I appreciate your consideration to respond. To be clear, I am asking so I have a place in the US to refer people to. Many wont do what I did.
Jim Peterson – Chicago
If I have this correct and using this reply correctly, you indicated on December 8, 2011 that you had a two level fusion and a “disc replaced” from Dr. Huddleston. Replacement discs are a bit rare – but then there is Mayo. I have suffered back pain issues for 32 years and on six varying: pain, anti-inflamatory and muscle control drugs, Lidocane & Flector Patches. In all 32 years I have spent or lost over a quarter-of-a-million dollars in medical, PT, procedures, drugs, travel for medical, lost time from work. I too have the almost identical scenario L4-L5 L5-S1 fused 12 years ago and because this wears out the next level every 10 or so years, this past December had the artificial disc procedure done in Barcelona by a world spine neurosurgeon (Germany is the epicenter that invented the artificial disc in the mid 80’s for an athlete and these facilities are the core of best learning center in Europe). I went there because i wanted the Spinal Kinetics M6-L disc (a standard for about the last 10 years). This was $29k cash and I am in the process of endeavoring reimbursement from my insurer. We will see where that goes, appeal etc. I am doing very well.
As you are aware, friends and extended family seem to know someone with escalating situations with back issues and many are treatable with PT, Meds, RF Ablation, etc – which you seem a tune to in your postings. However, some situations potentially suggest an artificial disc may be a wise consideration. So I am looking for resources in the US to refer people to. You, being six yours out have a story to tell. May I ask how you are doing, meds, any problems with facet joint pain in the artificial disc region? Also, I am interested in finding out what artificial disc people had surgically implanted?
Thanks for considering sharing.
Best of health to you.
Jim Peterson – Chicago