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Tue, Jun 16 7:14am · Implantable neurostimulator for chronic pain in Spine Health

Jim,
I know I’ve mentioned it before, but with the SCS and DRG stimulators not helping me, the Medtronic Pain Pump (now that I have a competent provider) is making a huge difference on my legs and feet. We’re still increasing to a “therapeutic” level for me, but I can pretty much stay active on my feet all day. I pay for it at the end of the day, but that’s what the fine tuning is working on.

Now if I could just find some treatment for the rest of the chronic pain throughout my body. Looking into having my stimulators removed now that the surgical centers are reopening. The other specialists all want MRIs and since the Stim units have not been helpful at all I want them removed.

I hope you are able to get some relief soon. I’ll be praying for you.
Carl

Nov 9, 2019 · Implantable neurostimulator for chronic pain in Spine Health

Wisco50,
You can look up my story if interested. I think Jim has probably heard it enough.
Don’t forget to look at the Medtronic Pain Pump too. As many have said, diff things work for diff people.
I’m going to be looking into having my both my Abbot/St. Jude SCS and DRG stimulators removed after 4 years as they have never worked well, and the techs cannot seem to adjust them to be effective.
My pain pump is great, but varies in the % of relief or my pain varies in intensity.
Just want to be sure that everyone knows what other options there are out there. No one informed me and I was not in any state of mind to research at the time.
Carl

Oct 21, 2019 · Pain rehabilitation in Chronic Pain

elle1233,
Here is the link to the MN med cannabis program registration.

https://cannabis.web.health.state.mn.us/

Your pain management clinic/Dr. Needs to refer you.

I tried but any systemic use caused severeside effects. I can and do use the topical cream which helps some of the localized pain.

I hope this helps.

Sep 18, 2019 · Implantable neurostimulator for chronic pain in Spine Health

All,
If you are in or willing to travel to the Twin Cities area of MN Dr. David Chang does revisions where he will go up and remove the scar tissue from the previous attempts of other Dr.s and place the leads in the correct location.
He was the one I finally went to after 4 failed surgeries by the original Dr. to get it in the correct spot.

Carl

Sep 18, 2019 · Implantable neurostimulator for chronic pain in Spine Health

FYI,
I have the DRG and the SCS from St. Jude (Abbott).

Originally I was told my SCS was MRI compatible. Then they changed the leads during one of my revisions and they now say the leads are not MRI compatible (or not approved yet – but that was 4 years ago).

I also have the DRG and they told me that I should not get an MRI since they have no trials showing that having 2 stimulators is safe in an MRI.

The point being that you need to make sure that not only the battery pack, but also BOTH your leads are ALREADY approved for MRI.

I just needed an MRI for my shoulder, but they said they would not recommend it. So I had a CT scan with contrast die which is much less accurate in certain diagnosis.

I no longer get any relief from my stimulators and am considering having them removed.

Carl

Sep 4, 2019 · Implantable neurostimulator for chronic pain in Spine Health

Yes, I was on a very high dose of dilaudid for about 6 years till the “Opiod Crisis”. No side effects for me.

Everyone reacts different to different meds. Something pain docs have a hard time realizing even when it is presented to them.

Something the crackdown on opiods just makes harder.

The pain pump can deliver other meds too, not just dilaudid.

Sep 4, 2019 · Implantable neurostimulator for chronic pain in Spine Health

Hi @jwhite59
In Oklahoma I originally had the standard leads. After the first failed install and the first failed revision they decided to put in paddle leads which then rotated 45 degrees so did not face my spine. Then a neurosurgeon did a laminectomy but “could not get the leads high enough due to scar tissue”
The fourth revision done here in MN was done perfectly and put into the original target zone, but for 3 years they have not been able to adjust it to be effective.
Not pushing it, but the only effective treatment
Since oral Dilaudid has been the Medtronic pain pump (which only case pumps Dilaudid). Changed my life.
I wish you the best of luck finding your solution.
Carl

Aug 21, 2019 · Implantable neurostimulator for chronic pain in Spine Health

Hi Jim,
Just wanted to touch bases. As you know I had the Abbott Stimulator which tested good but upon installation and after 4 revisions gives me no relief.
I then had the DRG test and it was amazing. However, a few months after installation it lost its effectiveness on me also.

I’ve tried every tech in Oklahoma and now MN several times and they cannot get it to be helpful.

I’ve had them off for most of a year with tests when they try to readjust.

I was never told and did not have the initiative to find out that there were other options.

A friend asked if I had tried a Medtronic pain pump. I had to suggest it to my pain clinic and they said “yes, that sounds like a really good fit for you”. Can you believe they install them but never posed it as an option!

I had it tested and installed last January and it has been a literal life changer for me. It took a long time to get it titrated up, but it helps more than either/both stimulators combined and there is room for improvement as time goes on.

Just want to be sure you hear about the options before getting The DRG implanted.

I wish you he best of luck and am glad you found a med that helps.

Carl