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Jun 16, 2017 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

For any who would like to share any issues with medical care for this disease here is a group specifically for that issue to share express concerns on care and any issues with the care, in positive constructive way, and support, encourage others having same or similar issues.
Here is the link. It is a secret Facebook group and any with diagnosis of this disease and their loved one helping them can join. Just go to this link or message me here to add you.

https://www.facebook.com/groups/790843481085446/

Jun 13, 2017 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

Hope your experience with surgeon and diagnosis goes well. I have been identified with the condition several times in last 3.5 years on CT. I have read in recent reports that biopsy is not always necessary for diagnosis. I’m getting biopsy soon. There is a MP group on fb if your not in it already and would like to join a lady will be inviting you most likely.:)

Apr 27, 2017 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

THANK YOU! Will contact you on fb. Yes Gulf war illness has been reported with cases of Sjogrens too. I live in Oklahoma also! Just was in Tulsa last week at the mayors veteran committee meeting and welcome home special ceremony to vietnam vets. I looked up on xpertdocs for specialist here in Oklahoma to treat this and hoping she will take my case. It is very hard for me to travel very far with spine disease I also have. SO praying can find one in Oklahoma. There is one in Dallas too. If I have to travel I will…is just hard .

Apr 26, 2017 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

NO they did not do ct with contrast the reporter of it suggested follow up with contrast…the only follow up was ultrasound that the tech said she didnt understand why they ordered this test..but the heart doctor referred me to oncology, hematology and GI for surgery consult, he is private non va doctor through veteran choice program living 40 miles from nearest VA.

Apr 26, 2017 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

Thank you! Have been looking for something like that!

Apr 26, 2017 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

Thank you. Im Gulf War Illness veteran and due to the myriad of symptoms that can include…which intestinal condtions such as sjogrens disease and others….things are overlooked….we muddle through the system with this vague list of symptoms and that. In 2013 I had ascites after passing kidney stones….severe…fluid around all my organs..hospitalized….and thus series of tests began. They noted issues in abdomen…life went on…stuff ignored as usual.
Then early this month I contracted rocky spotted mountain fever ( confirmed by lab taken days later just got confirmation today) was in ER for abdominal pain. On the CT they noted progression from the stuff in 2013 and through out the mesentery panniculitis……that was incidental to the other notes on the fluid around appendix( rmsf mimics appendicitis) . So in essence…the tick infection led to the CT the VA did not follow up with and this now I know of the mesentery issues progressing.
Had seen a heart doctor this week who looked at all my tests done from 2013 to now…with the ascites and stuff noted in digestive organs and he immediately suggested oncology, hematology and gi for surgery consult.
SO now….I know what mesentery panniculitis means…wow….GLAD to finally meet people who are familiar with it! I have looked all over the internet. Searched on fb and the only thing came up was two people mentioned it in a post. Did not see any groups on it.

Apr 26, 2017 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

Just read on my ct report of earlier this month suggested I have mesenteric Panniculitis….have no idea about any of it.