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Posts (29)

Thu, Sep 19 4:58am · Smartphone question: Which one is best for hard of hearing people? in Hearing Loss

I have single sided deafness with hyperacusis. So using a phone is very hard.
I found it easier if I phone folk making sure I am in a quiet place. I also have the phone on speaker.
Explain my hearing distortion and if it's a really important call that I need all details I ask for an email followup of the conversation

Thu, Sep 5 3:34am · Balance issues and hearing loss in Hearing Loss

I was falling and heavily. Also knocking into things. Doorways were not wide enough. I was flicked off by my PC many times between 2002 and 2012. Things finally escalated in 2015 and I was diagnosed with an acoustic neuroma. Having that mental challenge that now I had a caterpillar in my head helped.
Now I have trained myself to look ahead. If I want to look at something I stop and turn. I guess I'm a fast moving robot. Each position and action is separate. Now I take a tumble about twice a year.
I also had bilateral cataract surgery so vision improved.
If I have to go out in the dark I take two torches or flashlights.
Hope those few hints help cos it sure hurts when we tumble

Tue, Aug 27 8:08am · Controlling Tinnitus: What works for you? in Hearing Loss

Remain skeptical. Apart from mind training to distract from the annoying sounds I haven't heard of anything better than placebo. White sound etc is meant to help. I just pretend it's a sign of intelligence

Wed, Aug 7 4:05pm · Scoliosis & back braces, devices in Spine Health

Mine is only mild scoliosis, as such, can still be a pain in the proverbial tho.
The person who actually identified it was the priest who jokingly told me he could hear me walking down the aisle for communion and noted that I had an unequal clomp, clunk [in those days we had those metal plates on our soles to make them last] and it was later confirmed by Xrays, etc
I was told by my physio to always try and walk straight upright, stand upright and when lying make sure the spine was as straight as it could be, so that my leg with the tilted pelvis being one inch shorter than the other wasnt allowed to become 2 inches.
I have no bend in the lower part of my spine now so its either tip at the hips or get down on the knees

Nov 21, 2018 · The Pathways to Celiac Disease in Gastroenterology & GI Surgery

You really are in a hard place right now, so feeling for you. I had similar problems that you have but not to such a degree, and so have a wee inkling of what you are going through, including the marriage break up in the early 40s scenario. and the baby loss.
Have you tried a gluten and dairy free diet, intolerance doesnt show up on tests, its on history only. And until I went strictly that way, I finally got a life,
I'd be wary of having the prolapse fixed, until you have your diet under control which is controlling your constipation, No surgical suture and re-design can stop it happening again.
Your migraines, your brain fog, your dark grey cloud and anxiety, all lead to the 'opinion' that you are somehow poisoning yourself and gluten sure is something that can do that. Esp the beer and starchy foods is tho you have a candida problem which also can come from chronic gluten irritation of the gut wall.
So what is my opinion,???
its worth the 3mths of strict diet, that is checking EVERY label, cut out the processed foods, try and go to cooking from scratch and getting fruit and veges in. They dont have to be fresh, frozen is fine. Then if you see improvement make that your life
Be prepared for other things taking over the irritation as the gut starts to repair. It took me years to work out that SOY causes gastric bleeds,
Just as a hint, I milk my own goat, for milk, I have rice as my go-to for crackers and bread replacement, [got to put the beetroot on something]! I try to get most food from my orchard and garden, which I fully understand is hard to do if you dont have acreage.
Meanwhile for your poor fog brain, write notes, lots of magnets on the fridge, retrain yourself to think, use your notes on your cell phone. do puzzles and other memory games and try to go out for a walk daily.
Re train your gut with exercise, food and fluid, and you may 1. not need the surgery if its manageable. 2. feel better. 3 start living
I was 42 when my new life started and tho it crashed again at 50 for other reasons, Im more alive now 20yrs later than I was back in the mid 30s suffering many problems

Jul 19, 2018 · Health Habits: Medication Reminders in Healthy Living

Cut the months page of the calendar out and stick it to your fridge, with the dates ringed. Otherwise Id be using google calendar and have it connected to your cell phone and/or computer to ping at you each 5th day. . Agree nothing easier than 'on sun'

Apr 4, 2018 · Scoliosis - Introduce yourself and meet others in Spine Health

you are probably much worse than me, but I got kicked in the back by my sister when I was about 10 and the start of my back problems, Its only ever been noted when Ive had other xrays etc. that I have a twisting scoliosis. [about 8yrs ago] prior to that it was only reported as scoliosis and spurs on the thoracic level. Apart from seeing my physio , I basically see that my software[ muscles] keep the hardware [bones] as straight and strong as possible. Resting during bad times and pushing to the extreme during the good times. do you do swimming so that you are exercising with no weight bearing??
as for natural birth, babies are pretty squishy during birth, and unless its really narrow [ your obstetrician] will know if its going to be a planned bypass or a have a go level of difficulty

Apr 3, 2018 · Scoliosis - Introduce yourself and meet others in Spine Health

Sophee, so sorry you are being hit by one of the most unhealthy places to work in for its professional bullying tactics and thats in a hospital setting. I did over 45 yrs of my younger life, working as a nurse. And on hindsight bullying was rampant back in the 60s.
You certainly have many 'things going on' but for your back I can only sggest getting a good physio or I think you call them PT and get a set of exercises. the important thing is to get those supporting ligaments and muscles keeping your back straight and with the natural curve in it. Having problems with your pelvic organs is a worry, and I am guessing well investigated, one would have to wonder if you have either pinched nerve or maybe something similar to a spina bifida defect, but that would have been picked up on Xray.

I did work as a nurse with pain and illness, Im more obstinate than my donkey. And at times would leave my shift as unable to continue. That also met with sarcasm. As did my slowly fading away and heading for the coffin. I never shared my pain, my reasons with my co-workers, and that also met with bullying so you wont win which ever way you try to cope. So Im guessing since you need to work then do go. As I dont believe the USA has a good disability system or attitude.
I am now at the end of the 3 score and 14 life span, and no longer go to docs for treatment but wanting to know the diagnosis so that I can manage myself. One would think that would please them, but no it brings more arrogant attitude and refusal to help. But for me its how I can best manage if I know what is what. [different to my scoliosis,] I hope you can find out there someone to be part of the team with you, that can guide you on coping, and managing and slowing down 'things'
Yes pressure on the nerves can cause pain and dysfunction of pelvic organs