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Posts (25)

Nov 21, 2018 · The Pathways to Celiac Disease in Gastroenterology & GI Surgery

You really are in a hard place right now, so feeling for you. I had similar problems that you have but not to such a degree, and so have a wee inkling of what you are going through, including the marriage break up in the early 40s scenario. and the baby loss.
Have you tried a gluten and dairy free diet, intolerance doesnt show up on tests, its on history only. And until I went strictly that way, I finally got a life,
I'd be wary of having the prolapse fixed, until you have your diet under control which is controlling your constipation, No surgical suture and re-design can stop it happening again.
Your migraines, your brain fog, your dark grey cloud and anxiety, all lead to the 'opinion' that you are somehow poisoning yourself and gluten sure is something that can do that. Esp the beer and starchy foods is tho you have a candida problem which also can come from chronic gluten irritation of the gut wall.
So what is my opinion,???
its worth the 3mths of strict diet, that is checking EVERY label, cut out the processed foods, try and go to cooking from scratch and getting fruit and veges in. They dont have to be fresh, frozen is fine. Then if you see improvement make that your life
Be prepared for other things taking over the irritation as the gut starts to repair. It took me years to work out that SOY causes gastric bleeds,
Just as a hint, I milk my own goat, for milk, I have rice as my go-to for crackers and bread replacement, [got to put the beetroot on something]! I try to get most food from my orchard and garden, which I fully understand is hard to do if you dont have acreage.
Meanwhile for your poor fog brain, write notes, lots of magnets on the fridge, retrain yourself to think, use your notes on your cell phone. do puzzles and other memory games and try to go out for a walk daily.
Re train your gut with exercise, food and fluid, and you may 1. not need the surgery if its manageable. 2. feel better. 3 start living
I was 42 when my new life started and tho it crashed again at 50 for other reasons, Im more alive now 20yrs later than I was back in the mid 30s suffering many problems

Jul 19, 2018 · Health Habits: Medication Reminders in Healthy Living

Cut the months page of the calendar out and stick it to your fridge, with the dates ringed. Otherwise Id be using google calendar and have it connected to your cell phone and/or computer to ping at you each 5th day. . Agree nothing easier than 'on sun'

Apr 4, 2018 · Scoliosis - Introduce yourself and meet others in Spine Health

you are probably much worse than me, but I got kicked in the back by my sister when I was about 10 and the start of my back problems, Its only ever been noted when Ive had other xrays etc. that I have a twisting scoliosis. [about 8yrs ago] prior to that it was only reported as scoliosis and spurs on the thoracic level. Apart from seeing my physio , I basically see that my software[ muscles] keep the hardware [bones] as straight and strong as possible. Resting during bad times and pushing to the extreme during the good times. do you do swimming so that you are exercising with no weight bearing??
as for natural birth, babies are pretty squishy during birth, and unless its really narrow [ your obstetrician] will know if its going to be a planned bypass or a have a go level of difficulty

Apr 3, 2018 · Scoliosis - Introduce yourself and meet others in Spine Health

Sophee, so sorry you are being hit by one of the most unhealthy places to work in for its professional bullying tactics and thats in a hospital setting. I did over 45 yrs of my younger life, working as a nurse. And on hindsight bullying was rampant back in the 60s.
You certainly have many 'things going on' but for your back I can only sggest getting a good physio or I think you call them PT and get a set of exercises. the important thing is to get those supporting ligaments and muscles keeping your back straight and with the natural curve in it. Having problems with your pelvic organs is a worry, and I am guessing well investigated, one would have to wonder if you have either pinched nerve or maybe something similar to a spina bifida defect, but that would have been picked up on Xray.

I did work as a nurse with pain and illness, Im more obstinate than my donkey. And at times would leave my shift as unable to continue. That also met with sarcasm. As did my slowly fading away and heading for the coffin. I never shared my pain, my reasons with my co-workers, and that also met with bullying so you wont win which ever way you try to cope. So Im guessing since you need to work then do go. As I dont believe the USA has a good disability system or attitude.
I am now at the end of the 3 score and 14 life span, and no longer go to docs for treatment but wanting to know the diagnosis so that I can manage myself. One would think that would please them, but no it brings more arrogant attitude and refusal to help. But for me its how I can best manage if I know what is what. [different to my scoliosis,] I hope you can find out there someone to be part of the team with you, that can guide you on coping, and managing and slowing down 'things'
Yes pressure on the nerves can cause pain and dysfunction of pelvic organs

Feb 8, 2018 · Scoliosis - Introduce yourself and meet others in Spine Health

wow, I remember reading about the Harrington rod and the restrictions with them. So good to hear tho’ very hard at the beginning it has allowed you to have a modified freedom for all those years. My daughters were born in 1974, so it was a special year for many reasons

Feb 6, 2018 · Scoliosis - Introduce yourself and meet others in Spine Health

Its so hard to sort ones self out when there is a bundle of problems. Just which one do we prioritise tonight and which one will be the leader in the morning. I am amazed that you can even type with that bouquet of medications. but realise you have to have them unless you could wean off with a great team. And it would take over 6mths or longer.
The only suggestion but it sounds like you are trying hard to do that is to set a goal, to have the clock organise your life, rise and do chores by a certain time, have frequent rest periods and slowly reduce them. When there is energy use it when there isn’t then sleep off the lethargy. I have days where I just write it off as my recliner is the only place that seems to give enough energy for me to just breathe. I hope someone has an answer for you

Jan 31, 2018 · Scoliosis - Introduce yourself and meet others in Spine Health

Sorry to hear, I did actually think they can take several days to do the trick .. lets hope that is the case Sciatic pain is so hard to cope with

Jan 15, 2018 · Scoliosis - Introduce yourself and meet others in Spine Health

I had one of those netting lumbar supports in the car as well as on the chair for the computer, cushions didnt do it for the lower back, also they are cheap like 2x $15 NZ. I had fiddled with my daughter’s passenger seat but the back just didn’t come out sufficiently to push my back in, where I wanted it.