I agree with your response to Shay even though I haven’t had mine out yet. I’m not even supposed to be watch and wait (i.e. it was supposed to be removed Jan. ’16), but if anyone can get it removed when it’s small, then that’s the best course of action. I simply had a lot of problems with finding a reliable team in my state coupled with life events and not being able to afford all of the things that come with taking time from work, surgery and after care given my health complications and other responsibilities since my support system is almost non-existent. I too have been getting progressively worse. I have times when I have feelings of pressure in my head and cognitive and emotional problems on top of intermittent balance difficulties and increasing tinnitus in the tumor side ear. Two weeks or three ago, I worked for three days without taking enough breaks day in between and a long-distance friend said that she had been worried that I was having a stroke because my word choices and spelling were so horrible while we were chatting online and I wasn’t writing much and didn’t want to stay on. At the time, I just felt so “off.” I also keep having intermittent problems with math, facial numbness on the tumor side and other things.
So, yeah, Shay, get your extra opinions.
Part of the reason I’m in my situation is because the ER three years ago messed up when assessing my symptoms and a neurologist who I had never met phoned in a diagnosis to ER staff, then the radiologist at the same hospital messed up with diagnosed the problem and communicating with my former neurologist and I didn’t find out about the tumor until months later by accident. Because I had no idea that the pressure feeling worsens when I’m upset or the relation between blood pressure and ICP before I found out, I had an upsetting day with increasing pressure feeling in my head and no systems in place to try to alert me to stop interacting with people until the symptoms pass and warn clients about my condition, I lost my cool with my biggest client and then lost that income source and have not been able to regain anything similar since. The neurosurgery team I saw then kept downplaying the tumor as a cause of my symptoms since I have so many other conditions and the one doctor only admitted that it was likely the tumor after a different staff member said that some of the memory problems during a test were actually typical with this tumor, I found the Vestibular Disorders Association’s symptoms page which matched the majority of my symptoms and I confronted the doctor. I then found out months afterward I didn’t get my surgery that I was outright lied to by that same doctor about the facial nerve’s condition.
So, again, don’t be too concerned about getting extra opinions since it appears that having multiple opinions is better than trusting any one doctor outright.