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Oct 4, 2018 · Polymyalgia rheumatica in Autoimmune Diseases

The cereal would probably be too sweet for me but I drink camomile tea with sliced ginger root every evening and that helps

Jul 23, 2018 · PMR and Methotrexate in Autoimmune Diseases

An update on methotrexate: been on it for about a month along with 4 mg prednisone until first I came down with a respiratory bug caught off my husband. It took ages to shake off but I had no reason to think I should come off the metro until I cut my calf quite badly on a sharp object. This evolved into a nasty infection and I had to go on heavy duty antibiotics – I wasn’t warned that Metho hinders healing so continued taking it until I finally thought to call the rheumatologist who said to come off it until the cut had healed and no longer on Cephalexin.. So the warning to people on metho is to be very careful not to catch anything or cut yourself and if so, do not continue to stay on it. Neither the pharmacist or the two Doctors had warned me to come off it when it was prescribed unfortunately. ….

Jun 25, 2018 · Long term Polymyalgia Rheumatica in Autoimmune Diseases

That’s s good idea – l’ll hopefully be able to do that once I’ve seen the doctor next week

Jun 25, 2018 · Long term Polymyalgia Rheumatica in Autoimmune Diseases

Hi John – thanks for your input. The prednisone is one single 5 mg tablet so I can't split it up, so take it during breakfast. I have just started to take the methothextrate at supper time but I have to take the six tablets all at once.

My morning stiffness wears off fairly quickly as long as I keep moving – I have two dogs that need attention and exercise! I try to bike outdoors once a day and use my indoor bike every evening watching TV – I'm sure this helps to keep the PMR at bay somewhat. My shoulders get pretty sore at times and will improve once I get back to weekly Aquafit (hard to do in the summer months).

Sandra

Jun 25, 2018 · Long term Polymyalgia Rheumatica in Autoimmune Diseases

Sorry I should have said I am on six x 2.5 mg Methotrexate per week

Jun 25, 2018 · Long term Polymyalgia Rheumatica in Autoimmune Diseases

Sorry I haven't posted for a while but I do want to let you know that I am now down to 5 mg prednisone since I first started in March 2017 at 15 mg, and for the past two months have also been on methothextrate (6 mgs per week, down from 8 which did not agree with me). I am doing reasonably OK but find the metho makes me tired more easily – I see my doctor soon so will see what she thinks. I am determined not to have to increase the prednisone so suffer from stiffness in the first part of the mornings but lots of exercise seems to stave it off for the rest of the day. Night time sleeping is still a problem but Tylenol Arthritis helps me through.
Hope this info is of help and I will update again soon.

Sandra

Apr 8, 2018 · PMR Anyone? in Autoimmune Diseases

Cautiously hopeful – after 15 months I am down to 7mg prednisone and recently started on Methotrexate as symptoms were reappearing. So far things are improving apart from some sleeplessness at night. Would be interested to hear if anyone else is on Methotrexate.

Mar 26, 2018 · PMR Anyone? in Autoimmune Diseases

Your experience with PMR is very similar to mine – I was 70 when diagnosed and started on 15 mg prednisone. Now 15 mths later I am down to 7 mg per day . However, other symptoms have started that the Rheumatologist doesn't think are PMR related – pain in my buttock that radiates down leg to knee (fluctuates) and a constant ache so I have to sit down often. She has suggested going on Methotrexate which I haven't as yet as it would be yet another medication. So in the meantime until I can see my GP to go through my medications, I am taking twice daily Tylenol Arthritis tablets in addition to the prednisone which do take the edge off a bit.

I really think pain management is the key to this disease and am trying to get to weekly Aquafit for Arthritis sessions in our local pool – it's amazing how much movement you can initiate in the buoyancy of the water. When pain is bad I practice deep breathing into and out of my abdomen and this helps to relax my muscles.

Hope you are staring to find some relief.