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Nov 25, 2017 · Where should I go for further treatment after diagnosis of HOCM? in Hypertrophic Cardiomyopathy (HCM)

Thanks for your reply! I’m very thankful for my local dr. He is the one who found the “significant” heart murmur when he saw me for upper respiratory infection. The cardiologist I see is good, but like my dr said, “you need someone who specializes in this. It’s your life.” The problem with Atlanta is there is only 1 doctor listed and I’ve heard the wait is 2 monnths or more. I’m from Mccomb, which is north of NOLA about 110 miles. We love to visit NOLA though! What do I do to get an appt with the Mayo Clinic?

Nov 24, 2017 · Where should I go for further treatment after diagnosis of HOCM? in Hypertrophic Cardiomyopathy (HCM)

I’m also on a low-dose beta blocker. I was told I’m low risk for sudden death but to stay away from weightlifting or CrossFit for sure. I have moderate to severe thickening. Hope all goes well for your husband.

Nov 24, 2017 · Where should I go for further treatment after diagnosis of HOCM? in Hypertrophic Cardiomyopathy (HCM)

Hello, this question may have been asked and answered, but I didn’t see it. I live in Mississippi and was diagnosed in Feb ‘17 with HOCM. My local family doctor has suggested I see a specialist as a proactive measure. I have had an echo and electocardiogram from our local cardiologist. Where would you suggest I go? I follow another group that list the HCM Centers of Excellence but I just don’t know where to begin. Any input is appreciated.

Nov 24, 2017 · HCM-ers: Introduce yourself or just say hi in Hypertrophic Cardiomyopathy (HCM)

Hello, this question may have been asked and answered, but I didn’t see it. I live in Mississippi and was diagnosed in Feb ‘17 with HOCM. My local family doctor has suggested I see a specialist as a proactive measure. I have had an echo and electocardiogram from our local cardiologist. Where would you suggest I go? I follow another group that list the HCM Centers of Excellence but I just don’t know where to begin. Any input is appreciated.

Apr 24, 2017 · HCM-ers: Introduce yourself or just say hi in Hypertrophic Cardiomyopathy (HCM)

Hello all. I was recently diagnosed with HMC (obstructive). I am 41 and have never been diagnosed with a heart murmur or any other heart problems before. I’m still in a bit of shock I guess. My only symptoms were being out of breath when I recently trained for a 5K. (I thought I was just out of shape). I have moderate to severe thickening of the left wall. I did have genetic testing done which came back negative?? Leaving me even more confused as to how I came to have this. I have only seen a local heart dr. Who assured me I am at “low-risk” for sudden death but did put me on Metatropol and regular checkups. I guess my concern is if this is enough…

I’ve just found this group and will be researching others who have negative genetic testing and similar stories. I guess my biggest fear is if I should have a second opinion or just go live my life like my Dr. said.