I have read this information. It sounds about right. I am just frustrated with the lack of communication and care. I have monostotic FD, with Mazabrauds it is usually polyostotic. To have only one spot of FD and one Myxoma makes me very rare apparently. Only 9 documented cases I can find. With the increased chance of cancer I just can’t understand the lack of follow ups. It makes me nervous. I have had much more pain with the placement of the rod.