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Posts (2)

Apr 9, 2017 · Anyone here dealing with peripheral neuropathy? in Neuropathy

The way I cope is to do my best to ignore the numbness. There is no relief. There is plenty of snake oil spread in the cancer community: baking soda cures, reiki, acupuncture, Chinese herbs, essential oils, homeopathy. Yes, they could work for some. Placebo effects are powerful. That’s why the gold standard when testing if a treatment is safe *and* effective is a double blind clinical study where the treatment beats the placebo. I looked at the FB group and the protocol doesn’t meet that standard. And no given the placebo effect “it worked for me” doesn’t cut it, especially when you’re telling people to wean themselves off their medications before starting.

Apr 8, 2017 · Anyone here dealing with peripheral neuropathy? in Neuropathy

I developed peripheral neuropathy because of chemo. My oncologist says the only thing studies have proven effective is gabapentin (neurotoxin) It doesn’t work for everyone and if the dose isn’t high enough it won’t work at all. I think it has gotten slightly better but my fingers and toes and soles are pretty numb and cold makes it worse. I know others suffer more severely and at least I’m not in pain but you might want to ask your doctor about medication. I’m glad to read above there may be new treatments down the pipe. Ones based on science, not snake oil