My mother has Alzheimers, I would like to join.
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My daughter is going through the same thing. Her’s started with muscle loss and then a brain bleed, ICU for 10 days that was one year ago, confirmed diagnosis of CNS Vasculitis, Dermamyocitis and Myopathy NOS,not sure of the spelling it may be dermatologist.
Hanging in there
Thank you. She is doing good right now but every test they do they find something else. Now they are thinking Crohns Disease maybe involved.
Thanks for posting, my daughter has RA, Vasculitis, Dermamyocitis and Myopathy NOS we are looking every where for more information