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Posts (340)

6 days ago · In shock after MAC diagnosis in MAC & Bronchiectasis

@rmason I'm glad to hear that you are leading an active and interesting life despite being tested positive for MAC. From what I have learned, people can be positive for MAC but can still live a normal life and not have symptoms without being treated with antibiotics. MAC are such ubiquitous bacteria that it is very hard to live in an environment where they don't exist. The bad news is that for those who have other health issues that cause their immune system to run down, MAC infection will make their conditions worse. If you are otherwise healthy, like myself, the important thing to do is to be vigilant and work with your doctors to make sure that your lungs stay in good shape and there are no other medical problems that may affect your immune system and your general health. Hope everything goes well with you and the monarchs are thrilling under your loving care.


@windwalker What a relief to hear that your town was not affected by the hurricane. Thanks for letting us know.

Sun, Sep 8 8:57pm · In shock after MAC diagnosis in MAC & Bronchiectasis

@dsilva I have a similar situation as @ginak in that my pulmonologist didn't think drug treatment would have better outcome than wait and see option because the side effects of the drugs might do more harm than good to my body and the drug treatment would not guarantee success once and for all. Even if the treatment did manage to get rid of MAC at first, there would still be possibility that it might re-occur. I was diagnosed with MAC 5 years ago and have had bronchiectasis for many years prior to that point. I did not have any symptoms that others described, such as weight loss, fatigue, shortness of breath, etc. at the time of diagnosis except coughing up large amount of blood once out of the blue. He suggested that I schedule visits with him, first every 6 months then once a year, and make decisions at each visit whether I should go through treatment based on my lung conditions at the time of the visit. So far my lungs have not deteriorated at all and I continue to live a normal and active life without taking any medication.


@windwalker888 Hope everything turns out OK with you and your family.

Fri, Aug 30 4:21pm · In shock after MAC diagnosis in MAC & Bronchiectasis

What a great news, @windwalker Terri! Go out and celebrate.

Sat, Aug 24 8:10am · Supplements and the Big 3 in MAC & Bronchiectasis

From what I have read from multiple sources, the studies have not shown that vitamin supplements have any positive effect on our health. I had taken multi vitamin supplements for years until recently when I read more and more about them not being effective. So I decided to stop taking them. Terri is absolutely right that we'd be much better off considering getting the vitamins from food.

Mon, Aug 5 4:57pm · Nose stopped up on one side in Ear, Nose & Throat (ENT)

Sorry, I'm not able to answer the question as I don't have stuffy nose. What I've been having is post-nasal drip most likely caused by allergies. It has gotten much better after a period of allergy shot treatment.

Mon, Jul 22 9:21am · MAC nodules in MAC & Bronchiectasis

@bibes I was diagnosed with MAC almost 5 years ago. My lungs were cloudy at first, then got better each subsequent follow up visit. The chest X-ray showed a nodule last year, but my pumonologist didn't think it was anything serious. So far I have not felt anything out of the ordinary. I don't have fatigue and am not short of breath. And I'm not on drug treatment and have no plans to go on any treatment for the foreseeable future.