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Fri, Mar 15 1:21pm · Meeting Members in MAC & Bronchiectasis

Two beautiful ladies indeed!

Tue, Mar 12 7:28pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@alleycatkate I'm also pre-diabetic. After going on the low carb diet, my A1C number went from slightly above the borderline to slightly below it. But it is plateaued after that. My doctor told me that she felt that my blood sugar might have always been on the higher end of the normal range and I just wasn't aware of it until my diagnosis. So this may be the best I can hope for. That's OK with me as long as I can keep it from creeping up. So far so good.

Tue, Mar 12 7:18pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@mariierod123 I'm not on any particular diet except consciously try to include healthy items in my daily meals. When I looked up Keto diet, I was surprised to find out that I'm already eating a number of the things on daily basis that are in this diet, such as avocado, blueberries, almonds, and eggs. There are other food items in this diet that I eat on regular basis. Although I'm not strict on what I eat or not eat, I feel that I'm doing something right because I feel good and healthy.

Tue, Mar 12 3:50pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@alleycatkate This MAC thing is a total mystery to me. I've done as much reading on it as I can stomach. If the doctors can't even be on the same page with the cause and treatment plans, I figure I will just concentrate on doing what I can do and let the rest lie where it may. I totally agree with you about diet. One big component is sugar. We've got to cut as much sugar from our diet as we can manage. Not just sugar as what's in desert, but carbohydrate. If I need to eat it, I go for whole grains, such as whole wheat and brown rice, keeping the white stuff to a minimum. Just so happens I'm cursed with family history of diabetes. I don't have it yet. But that is the biggest motivation for me to cut down on sugar and carbs. The fear of getting diabetes is strong enough to keep myself inline. And I feel pretty good so far.

Tue, Mar 12 11:04am · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@windwalker Whatever the reason, I probably won't move unless my husband agrees to move to Colorado with me (not to run away from MAC for for the love of the mountains). So my goal is to try my very best to stay healthy. The rest is out of my hands. Thankfully, I have not had problems with my lungs for the past 4+ years. Fingers crossed I can keep MAC away for as long as possible, hopefully forever.

Mon, Mar 11 9:06am · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@windwalker From the list of MAC hot spots, we probably can deduce that heat and humidity are not the determining factor for the existence of MAC, as these states have varying climates. Some hot but not humid, some hot and humid, some have cold and damp winters some do not. Wisconsin may get humid in the southern portion of the state in summer, but its winter is cold and dry. So far, I have not been able to find any source that would explain to me why there is concentration of MAC in some places around the country. I guess if people decide to move, stay away from the MAC hot spots is a safer way to go, although one's physical condition being another determining factor may or may not allow them to completely escape the possibility of being infected by MAC.

Wed, Mar 6 6:27pm · Extreme fatigue in MAC & Bronchiectasis

@mariierod123 Although I have had bronchiectasis for many years, I did not have any lung disease, or any other disease, before being diagnosed with MAC infection. I have not been sick since then, either. And I have never been on the drug treatment. Yet I feel just fine and live a normal life. Go figure.

Thu, Feb 21 9:40am · Diagnosed with MAC but not being treated in MAC & Bronchiectasis

@alleycatkate I agree with you. I have not been on any antibiotics since diagnosis in fall of 2014. I'm doing great and condition of my lungs is not deteriorating based on one CT scan and multiple chest X-rays. Although I have not had another sputum test, I do believe I'm cleared of MAC for now. I'm making every effort to eat healthy and stay active to stake MAC infection out. But with bronchiectasis, you just never know. Got to be vigilant at all times Can't afford to take eyes off for even one day.