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Sun, Apr 12 4:41pm · Have MAC and coughing up blood in MAC & Bronchiectasis

@marciefincher Hi, I coughed up blood before. It was liquid blood mixed with pieces. It came on very suddenly and I had no other symptoms except coughing and excess mucus due to allergies. I went to the ER because the quantity of blood was substantial. They kept me there overnight (I went in the evening) and the blood kept coming out throughout the night, soaking up a number of paper towels. It subsided by early next morning and completely stopped by midday. It sure was terrifying to see huge amount of blood coming out every time I coughed. I was subsequently diagnosed with bronchiectasis and MAC. That was 5+ years ago and it has not returned since. That was the only time it's happened to me so far.

Dec 18, 2019 · No end of things to ponder. in MAC & Bronchiectasis

@thumperguy I try to bring up mucus a few times a day. Sometimes it is clear, sometimes it is yellow (usually yellow first thing in the morning). I do this on purpose so I know I have not kept the excess mucus inside my lungs to provide sanctuary for bacteria. But I have not pondered its existence nor its colors. My take on it: as long as I don't have other symptoms that interferes with my normal daily living, I do not worry or even wonder about it. So far I have no symptoms that warrant concern and I'm as active as I want to be without any hindrance. So that is good enough for me.

Dec 9, 2019 · Colonoscopy and bronchiectasis in MAC & Bronchiectasis

@thumperguy I can see that for those with low risk of colon cancer, flexible sigmoidoscopy is probably a good choice. With my family history, though, I would rather go through colonoscopy so the doctor can see the entire colon rather than just the lower portion of it. https://www.mayoclinic.org/tests-procedures/flexible-sigmoidoscopy/about/pac-20394189

Dec 9, 2019 · Colonoscopy and bronchiectasis in MAC & Bronchiectasis

Did your friend get pneumonia and sepsis because of anesthesia? I have had bronchiectasis for many years. Due to my family history of colon cancer, I have to undergo colonoscopy every 5 years instead of every 10 years like everybody else. I have not had any problem afterwards. Ask the clinic where your colonoscopy will be performed if they can give you twilight anesthesia, which is much milder than full anesthesia. You will be vaguely aware of your surroundings but won't feel anything physically that is being done to you.

Nov 5, 2019 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@heathert I assume you are asking about my allergy shots treatment (allergen immunotherapy), correct? The build-up lasted about 6 months and maintenance the remainder of the 5-year treatment period. During the build-up period, I would receive shots for various allergies every week, then every other week. During the maintenance period, I would receive the same number of shots at a longer interval. I think it was once a month. I'm no longer receiving these shots. That ended a number of year ago.

Oct 30, 2019 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

I have gone through the "build-up" phase and the "maintenance" phase. The whole process took about 5 years to complete. I don't believe you can repeat it and receive better or even same result. And I doubt the doctors would even let me repeat it. I understood from get go that the treatment might or might not work and, even if it worked, it might not last forever.

Oct 30, 2019 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@windwalker Terri, it is very possible. I used to cough a lot and had to carry water wherever I went. Then I went through months of allergy shots and the coughing subsided significantly to barely noticeable. The interesting thing is that it didn't come back when I was diagnosed with MAC 5 years ago. But it came back earlier this year and has reached a level almost the same as I had years before. I don't know what is going on. The only thing I know is that I feel very healthy still and nothing else has changed for me physically. I have an followup appointment with my pulmonologist in December. If there is no change in my lung condition by then, I'll be happy to just live with it because I know that the allergy shot treatment must have worn off by now and there is not much I can do about it.

Oct 29, 2019 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@sounder27 I also have trouble with coughing when I'm lying down. But once I fall asleep, coughing stops. I have water by my bedside at all times to try to lubricate my throat. Very annoying. Wish it would stop.