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6 days ago · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@heathert I assume you are asking about my allergy shots treatment (allergen immunotherapy), correct? The build-up lasted about 6 months and maintenance the remainder of the 5-year treatment period. During the build-up period, I would receive shots for various allergies every week, then every other week. During the maintenance period, I would receive the same number of shots at a longer interval. I think it was once a month. I'm no longer receiving these shots. That ended a number of year ago.

Wed, Oct 30 9:16pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

I have gone through the "build-up" phase and the "maintenance" phase. The whole process took about 5 years to complete. I don't believe you can repeat it and receive better or even same result. And I doubt the doctors would even let me repeat it. I understood from get go that the treatment might or might not work and, even if it worked, it might not last forever.

Wed, Oct 30 8:35am · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@windwalker Terri, it is very possible. I used to cough a lot and had to carry water wherever I went. Then I went through months of allergy shots and the coughing subsided significantly to barely noticeable. The interesting thing is that it didn't come back when I was diagnosed with MAC 5 years ago. But it came back earlier this year and has reached a level almost the same as I had years before. I don't know what is going on. The only thing I know is that I feel very healthy still and nothing else has changed for me physically. I have an followup appointment with my pulmonologist in December. If there is no change in my lung condition by then, I'll be happy to just live with it because I know that the allergy shot treatment must have worn off by now and there is not much I can do about it.

Tue, Oct 29 5:14pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@sounder27 I also have trouble with coughing when I'm lying down. But once I fall asleep, coughing stops. I have water by my bedside at all times to try to lubricate my throat. Very annoying. Wish it would stop.

Tue, Oct 29 5:09pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@ginak Thank you for sharing the information about coughing. I'm allergic to many things, both indoor and outdoor kinds. My throat is constantly in a irritated state. I can go for hours without coughing even once. Then the throat gets itchy and I immediately feel the need to cough. I have tried to suppress it by sipping water. Sometimes it works and sometimes not. When I cannot control it with water, holding the cough would only lead to eventual violent eruption of longer and stronger coughs. At times, I do suspect that my allergies are only part of the reason that I cough. The other part is kind of mental, because sometimes when I realize that I haven't coughed for a while, my throat will immediately feel itchy. Also I don't cough in my sleep although my throat must have felt the same as when I'm awake. So it is definitely a combination of physical and mental aspects that induce the cough.

Mon, Sep 23 1:15pm · Pneumococcal Vaccinations against pneumonia in MAC & Bronchiectasis

@alleycat Hi Kate, I'm 66. I received the first shot and was told there was a time gap before receiving the second one. I believe I'm due for the second one this year. I've never had pneumonia and don't remember the last time I had flu (maybe a mild one 30+ years ago). But I get flu shot every single year after I turned 50 without fail. With less than perfect lungs, I'm not taking any chances.

Mon, Sep 9 8:26pm · In shock after MAC diagnosis in MAC & Bronchiectasis

@rmason I'm glad to hear that you are leading an active and interesting life despite being tested positive for MAC. From what I have learned, people can be positive for MAC but can still live a normal life and not have symptoms without being treated with antibiotics. MAC are such ubiquitous bacteria that it is very hard to live in an environment where they don't exist. The bad news is that for those who have other health issues that cause their immune system to run down, MAC infection will make their conditions worse. If you are otherwise healthy, like myself, the important thing to do is to be vigilant and work with your doctors to make sure that your lungs stay in good shape and there are no other medical problems that may affect your immune system and your general health. Hope everything goes well with you and the monarchs are thrilling under your loving care.

Mon, Sep 9 10:24am · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@windwalker What a relief to hear that your town was not affected by the hurricane. Thanks for letting us know.