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Posts (6)

Apr 6, 2017 · MCTD (Mixed Connective Tissue Disease) in Autoimmune Diseases

Yes, the frustrating part is that they haven’t done any genetic testing yet and they seem reluctant to do so, even though I am willing to pay.

Apr 6, 2017 · MCTD (Mixed Connective Tissue Disease) in Autoimmune Diseases

I am so sorry you are going thru that.

Apr 5, 2017 · MCTD (Mixed Connective Tissue Disease) in Autoimmune Diseases

Thank you! Early onset of osteoarthritis, pain all over, venous problems, poor wound healing, joint hypermobility in shoulders, ankles, knees, etc.

Apr 5, 2017 · MCTD (Mixed Connective Tissue Disease) in Autoimmune Diseases

Does anyone have experience dealing with connective tissue disorders? I’m wondering how you went about getting a diagnosis as I am in constant pain and have been seen by a variety of specialists but they say that since my RA bloodwork is normal that it’s not a connective tissues disorder, is that accurate?

Apr 5, 2017 · MCTD (Mixed Connective Tissue Disease) in Autoimmune Diseases

I’m wondering how you all went about getting a diagnosis? I am feeling frustrated as I have other medical issues but my RA testing is coming back ‘normal’ so they don’t think that I have a connective tissues disorder, but many doctors have mentioned it. (And I have several symptoms that align with them.) Any suggestions?
Thx.