Yes, the frustrating part is that they haven’t done any genetic testing yet and they seem reluctant to do so, even though I am willing to pay.
Member has chosen to not make this information public.
Member not yet following any Groups.
Member not yet following any Pages.
Does anyone have experience dealing with connective tissue disorders? I’m wondering how you went about getting a diagnosis as I am in constant pain and have been seen by a variety of specialists but they say that since my RA bloodwork is normal that it’s not a connective tissues disorder, is that accurate?
I’m wondering how you all went about getting a diagnosis? I am feeling frustrated as I have other medical issues but my RA testing is coming back ‘normal’ so they don’t think that I have a connective tissues disorder, but many doctors have mentioned it. (And I have several symptoms that align with them.) Any suggestions?