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Posts (31)

Sat, Apr 4 7:26pm · COVID-19 and Transplant Patients in Transplants

Hello everyone; I am almost 9 years out from transplant and wanted to wish everyone good thoughts and prayers over all of our situations. I am doing well this far out from transplant and am staying safe. I did not know if the medical pros are still continuing transplant surgery during this difficult time of COVID19. My prayer for all of those who are waiting for transplant is don't give up. I have not been on this page in a long time and just dropped in to check it out once again. I will be praying for all of the world as I have been since the COVID19 outbreak.

May 27, 2017 · Problems post-Kidney/Liver transplant in Transplants

Hello all; I saw the post about stents with the young man having issues. I am really sorry to hear of these post transplant complications.

Speaking for myself; I had a stent placed in my ureter (Liver-kidney transplant 2011) and did not know about it until they removed it. This may sound strange, but I did not know much or remember much after the transplant. My husband knew the details more than I.

Do you have a nurse coordinator at Mayo who works with the transplant team? I would call in to the transplant center and let them know what is happening. The team will want to know about these issues promptly. The local nephrologist should be keeping them informed of the patient’s progress and difficulty.

My understanding for the stent placement is to keep the ureter open. Has there been infection that cause the stent failure? After all this time, I still call the team with any issues I am having and they always are interested in what is going on.

I hope this helps and the patient has a full recovery. Will keep you in my thoughts and prayers. CK

May 21, 2017 · transplant Immunosuppressants in Transplants

Hello everyone; I haven’t checked in a while. I find this question interesting because I have had “night sweats” before and after transplant. I have had tremors, more prominent after transplant than before. I don’t know what you mean by lower GI symptoms, if diarrhea, no symptoms. I tend to be more worried about the tremors than anything else. My mother had Parkinson’s disease induced by a medication and that is worrisome for me. I can live with most of my symptoms without much worry as I feel it is a small price to pay. I do not have thyroid problems. I hope you can find the answer soon. Until next time. CK.

Apr 26, 2017 · Weight loss in Transplants

I think any time we feel different or sickly, we tend to think is something else wrong. I hate to think things like that because we all have been through so much. The doubt is always there about something else being wrong. Does anyone else feel this way? I am very proactive about my medical care and, especially my bloodwork numbers. I always want to know what my levels are running. Is everyone else this way? Just asking… I feel very comfortable asking my physicians questions about my health and about anything I do not understand. I am curious about everything. I have to know… How do you feel about asking questionsf?

Apr 26, 2017 · Weight loss in Transplants

Yes, one project a day or when you have time. I used orange oil on my cabinets and chairs the other day while cleaning, but I did not get the table due to all the junk on it. It has become a pharmacy instead of a dining table. Between the glucose logs, medication trays, and other incidentals it needs a bulldozer to clean it off. I had planned to do it today but am just not feeling it. Tomorrow is another day… I have another DR apt on Friday with GI. It is time for colonoscopy. It all comes around regularly.

I, also wake up and have bathroom trips at night usually 3-4. I only drink water, no soda, teas, or coffee. I stopped drinking all that when I was diagnosed with diabetes. I don’t miss it at all now and never even think about it. I make tea for the guys and it does not bother me at all. I use to drink tea by the gallons too, could not be without it. Funny how our tastes change over time and medical conditions.

About that move you will be doing, wow… I would hate to face that one at my age now. The thought of packing up all this stuff we have accumulated sickens me. You are brave to do this at this stage of life. With our bad health, (husband with heart ailments) we would have to get a lot of people involved. Good luck with your move. I hope it goes smoothly.

About weakness, I have days like that too. Could it be a low potassium level? When I feel washed out, I usually have a banana for a snack and picker upper.
Take good care, CK

Apr 26, 2017 · Weight loss in Transplants

Good morning everyone; its been a busy time. After a little R&R with my sister, I decided to work on spring cleaning. Since my mobility is limited, I decided to find things in my safe place (home) that I can do to keep moving. I cleaned out and reorganized my kitchen over the past several days. It wasn’t as bad as I imagined. Are any of you doing spring cleaning?

I went to my local nephrologist yesterday and received a great report. All my numbers were good and weight is still stable. I am pushing my plate back at every meal again and my goal is to keep moving.

In response to a question about strength prior to transplant, I was very weak and still have issues with balance. I’m not sure if the balance is related to blindess or neuro. When I see primary again I will ask about an evaluation for PT.

I wish all of you a wonderful day. CK.

Apr 19, 2017 · This and That and Talk - My Transplant in Transplants

Hello; I have been out of town for a few days enjoying the holiday with my sister. I took this morning to catch up on the conversations here. I know about some of the ADA requirements for accessibility. I live in a very small town with only 2-3 gyms. I am considering asking my PCP about PT for balance issues. I have not heard back from the yoga thing. I will call again and ask about home instruction for a few moves and will see how that goes. I will see nephrologist next week and listen to his suggestions also. I am weaning myself off sugar (as little intake).

Have you been seeing dermatology for skin followups since transplant? Lets not forget to keep our skin checks per transplant team.

I hope all of you have a blessed day, CK

Apr 12, 2017 · This and That and Talk - My Transplant in Transplants

Thank you Rosemary. I try to be a positive person and not let my struggles get me down. I am really enjoying the posts from all of you. Thanks so much for the encouraging words.