Badges (1)

About

Member has chosen to not make this information public.

Groups

Member not yet following any Groups.

Pages

Member not yet following any Pages.

Posts (6)

Jul 18, 2018 · Post Interferon Syndrome in Infectious Diseases

Lisa,
I do my best to keep my spirits up, even though i am in a very similar situation. I have a genuis IQ, which i never usually say, but saying it now because i can barely think straight half the time. I have terrible brain fog and memory problems. I was diagnosed with chronic fatigue syndrome and fibromyalgia, but also told these symptoms are a result of the interferon. Gastrointestinal problems and eyesight problems are also related to post interferon. I have been researching for years and would give anything to have not taken interferon. We are not alone. People all over the world are suffering similar long term side effects.
I cant undo what has already happened. All i can do is manage my symptoms as best i can and be grateful things are not even worse. No, it is not fair. Yes, there should be a lawsuit we could join. YES, they should be trying to figure out treatments to help those of us suffering years after treatment. Know that you are not alone. Ill keep you in my thoughts.
Krista

Jul 17, 2018 · Post Interferon Syndrome in Infectious Diseases

I deal with life by doing lots of meditation. I also use ice for pain. I was on a long acting pain medication, but new government regulations regarding pain meds made it so that i can no longer be on that. My life has gone from bad to worse without that medication. I am not giving up hope that I will improve, or get back to at least the level of functioning i was at while on heavier pain meds. I wish the pharmaceutical companies would admit to long term side effects post interferon. There are plenty of us out here suffering. I had genotype 3A. I wish i would have known that new treatments were on the horizon back in 2009 when I took the Pega interferon treatment for six months of hell. I do not have the virus detected in my blood anymore. I am barely able to leave the house anymore, however, and developed my symptoms of pain and fatigue shortly after finishing the treatment. I am and have been chronically ill for over 8 years. I am not getting better at this point, but have gotten worse. The long term side effects of post interferon syndrome have devastated my life. I do my best to remain hopeful, and grateful for whatever i can.
Best,
Krista

Jul 17, 2018 · Post Interferon Syndrome in Infectious Diseases

Hi lisa. I am 8 years post Pegasus interferon and ribavirin, and have similar symptoms. I have severe chronic fatigue syndrome and severe fibromyalgia. I have gastritis and eyesight problems. I am barely functioning. I get terrible brain fog as well. I know these symptoms were caused by the interferon. I was very fit and healthy before doing the treatment.
Krista

Jun 19, 2017 · After Hep C Treatment in Infectious Diseases

Ailments are due to the interferon combined with ribavirin. Is there any hope for the many hundreds or more people worldwide who are experiencing permanent side effects after treatment? A label of Post Interferon Syndrome has been given, does this mean that there is research happrning to help people who suffer?

Jun 19, 2017 · After Hep C Treatment in Infectious Diseases

I underwent Pegasys interferom treatment for genotype 3A back in 2009. I have never been the same. I am severely disanoed with unbearable pain, fatigue and cognitive impairment. I also developed severe gastritis. I function up to 30 percent or less of normal. I have been diagnosed with fibromyalgia and chronic fatigue syndrome. I am convinced that my aimen

Apr 1, 2017 · After Hep C Treatment in Infectious Diseases

I have been experiencing permanent side effects after taking Pegasys interferon with ribavirin. I have severe fibromyalgia and chronic fatigue syndrome plus gastritis and esophogitis. I have vision problems. I finished treatment in 2009. I was told my side effects would wear off eventually but instead they are worse. I can no longer work or go to school. I function at less than 30% of normal. How many other people are suffering like me? I read that it is being called post interferon syndrome. What about lawsuits. My life is basically ruined, except I choose to go on the best i can. Klk370