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Apr 9, 2017 · Daughter is constantly ill? Is it nothing or a Gastro/ Auto Immune or? in About Kids & Teens

Hi @kanaazpereira I did not get a phone number to call, but in the letter confirming my appointment it said I would receive a schedule when I arrive. Just trying to talk to my daughter about going to the Dr. has been horrible. She cries and pleads with me not to make her go. We are going over spring break so I I am want to try and do something that she will enjoy and hope that the staff will ease her fears.

Thank you for your reply.

Apr 8, 2017 · Daughter is constantly ill? Is it nothing or a Gastro/ Auto Immune or? in About Kids & Teens

Thank you for your feedback, I have been driving myself crazy looking online. We have an appointment with the Pediatric Diagnostic Center at the Mayo on Weds. My daughter is petrified of Dr’s so I am hoping it won’t be to overwhelming for her. Does anyone know if I should just plan to be there for a couple of hours, the whole day or if I should make arrangements to spend the night. Will they do tests on her that day? What can I expect the at the first diagnostic appointment? Will we have to come back the next day? I just hope we are not going to be told that her bloodwork is normal and they do not know what it is. She can be fine and then the next minute she is nauseated and curled up in a ball. All she wants to do is lay in her bed and has no energy to do a lot and the headaches that she is constantly getting worries me. My pediatrician did run the celiac test but that came back negative. I also notice she will be walking at times and her knee will give out or buckle, I hope the tumor that they found on her hip is not causing this. I plan to maybe take her to a movie while in Rochester or do something fun with her. So if you have any ideas that my husband and I can do with my daughter I would love to hear.

Apr 4, 2017 · GASTRO/AUTOIMMUNE OR SOMETHING DIFF? in Digestive Health

I am concerned about my 7 year old daughter. She has started complaining about having a “bubble” feeling in her throat. She says sometimes it is big and sometimes it is not. She does not want to eat because when she does she feels nauseas. When she gets nauseas she gets the chills really bad and begins to shake, have diarrhea. This has been going on since the beginning of March. She is not getting good sleep because this “bubble’ wakes her up, she has dark circles around her eyes, and she is constantly tired. We have brought her to out pediatrician, they did an x-ray which she thought looked normal, bloodwork which was fine and autoimmune tests (celiac) which was negative. They put her on antacids and said it must be acid reflux, but the medication has not helped and the bubble in constantly there and my poor daughter is not herself and completely run down. I also worry because she has been sick since the end of December every two weeks with some sort of illness. The end of December she had 103 temperature and was having labored breathing, headache and cough at times – they said it was croup. She seemed to get bette than two weeks later had bad headaches, tired constantly, had stuffed up nose, hard to breathe they said they could test her for pneumonia but when listening to her chest she sounded ok. She got better for a couple weeks than end of January she had bad headaches, congested, body aches and tired all the time. They said it was a sinus infection. She got better for a week and a half and then came home one night after school and started vomiting she threw up at least 15 times and could not even lay down or take a spoonful of water or it would come right back up. She got better for a week and now we are dealing with this feeling of a bubble in her throat, headaches and nauseas all the time and this has been going on since March 7th. Oh and after they did her stomach x-ray that looked normal the radiologist called my pediatrician to say there is a tumor on her hip they found so we need to bring her back and do a hip x-ray. They said after the hip x-ray that it seems to be benign. I just worry with her immune system getting kicked down all the time and in a house of 6 she is the only one getting sick constantly. I don;t know if it is a gastro issue, auto immune issue, or what to do. My daughter asks me if she is ever going to feel normal and good again?? I am truly at a loss as to what might be going on with her, but just want her to feel better. Any ideas?

Apr 4, 2017 · Daughter is constantly ill? Is it nothing or a Gastro/ Auto Immune or? in About Kids & Teens

I am concerned about my 7 year old daughter. She has started complaining about having a “bubble” feeling in her throat. She says sometimes it is big and sometimes it is not. She does not want to eat because when she does she feels nauseas. When she gets nauseas she gets the chills really bad and begins to shake, have diarrhea. This has been going on since the beginning of March. She is not getting good sleep because this “bubble’ wakes her up, she has dark circles around her eyes, and she is constantly tired. We have brought her to out pediatrician, they did an x-ray which she thought looked normal, bloodwork which was fine and autoimmune tests (celiac) which was negative. They put her on antacids and said it must be acid reflux, but the medication has not helped and the bubble in constantly there and my poor daughter is not herself and completely run down. I also worry because she has been sick since the end of December every two weeks with some sort of illness. The end of December she had 103 temperature and was having labored breathing, headache and cough at times – they said it was croup. She seemed to get bette than two weeks later had bad headaches, tired constantly, had stuffed up nose, hard to breathe they said they could test her for pneumonia but when listening to her chest she sounded ok. She got better for a couple weeks than end of January she had bad headaches, congested, body aches and tired all the time. They said it was a sinus infection. She got better for a week and a half and then came home one night after school and started vomiting she threw up at least 15 times and could not even lay down or take a spoonful of water or it would come right back up. She got better for a week and now we are dealing with this feeling of a bubble in her throat, headaches and nauseas all the time and this has been going on since March 7th. Oh and after they did her stomach x-ray that looked normal the radiologist called my pediatrician to say there is a tumor on her hip they found so we need to bring her back and do a hip x-ray. They said after the hip x-ray that it seems to be benign. I just worry with her immune system getting kicked down all the time and in a house of 6 she is the only one getting sick constantly. I don;t know if it is a gastro issue, auto immune issue, or what to do. My daughter asks me if she is ever going to feel normal and good again?? I am truly at a loss as to what might be going on with her, but just want her to feel better. Any ideas?