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Oct 14, 2018 · In Search of Relief in Neuropathy

Hi @johnbishop – I have been on the suggested nutrition for over one year by now, unfortunately the progression of my idiopathic, demyelinating PN of small fibres has not stopped nor reversed – I am continuing anyhow. But after realyl getting into the literature of Stem Cell Therapy, I will now travel to a Budapest (Hungary) Center for plastic surgery where they offer the S C Therapy with my own fat cells (via liposuction and centrifugal extraction of body own stem cells which are then reinjected into knees for my knee arthrosis and intravenous to address PN) – it is expensive and there is no guarantee. But with almost 80 years of age I have spent a furtune on all kind of ways and means to address my PN that it makes no big difference to try something new which is only just starting in Europe and where most countries do not allow SCT. We will see! Has anyone here done any SCT and what was the outcome?

Oct 14, 2018 · In Search of Relief in Neuropathy

Hi @johnbishop – thanks a lot for your comments on lllt and the publication, one I have not had in my collection as yet – I would like to add another one or two studies on low-level laser therapy, also caled photobiomodulation. On most recent studies, partially not as yet published, I understand that the applied dose per cm2 tissue which was usually from 1 to 5 joules seems to be consierably higher. So those laser lighter type output power of 1 to 5 mW would take quite some time if such recommended doses should be reached.
Also I share your intention on getting one of those low cost one-man-sauna, I found a lot of relatively low cost units on amazon.de, the german version, there again it may be interesting to see what infra red heat lamps they are using, as the absorption of water in the human cells depends on the wavelength used in the infra red spectrum. I am trying to add the link on water absorption of light. Mostly the manufacturers do not state the wave length of their heat lamps but should be able to disclose if one inquires. I think that the wavelength should be below 2000nm so there is some transmisison of light in subcutaneous tissue structures which could, like laser light, stimulate the repair of peripheral nerve damages.

Jul 6, 2018 · Laser Therapy for Neuropathy in Neuropathy

Hi from Switzerland, I have tried laser therapy with a specially made scanner laser giving infra red laser emission distribured evenly over feet and leggs – with discussed parameters of 3 to 4 joules per cm2 my burning pain level increased significantly on day 1 and 2, when reducing this dose to 1 J/cm2 the burning sensation appeared again on day 1 only – so that I stopped after a few weeks. With new scientific results being published I am encouraged to try again with a lower dosis and a lower output power level in order to obtain a reaction which is below increasing burning pain – and see if by reducing to 2 treastments only instead of every 2nd day I may obtain better results myself. I am on opioides but follow the protocoll for about one year, have tried everything under the sun such as acupuncture, laser, TENS, EMS, physio therapy, medical massage, osteopathy I am trying out diets, walk my dog regularly and make exerecises on my home trainer, vibration platform and many dry exercises in my room so that I stay mobile with my 78 years. I think moving and dieting can help a lot, I will now try stem cell therapy which is difficult to find in Europe in where as Texas allows clinics to offer stem cell injections (of your own stem cells out of your own fat after liposuction and centrifugal extraction of the required cells.. Sounds very promising, anyone having experience in stem cell therapy, please let me know. I am looking for a European solution as travelling over seas in my age and stage of physical health is not what I want to go throgh. I heard of offers in eastern european countries like Czechia, Hungary, but also Germany and Belgium are preparing for this promissing therapy, we will see. Hope this was of any help to you.

Jul 6, 2018 · Living with Neuropathy - Welcome to the group in Neuropathy

Sounds great, I will be glad to receive your report after this August 4th meeting, thanks for your assistance!

Jul 5, 2018 · Living with Neuropathy - Welcome to the group in Neuropathy

have you or anyone heard of Stem Cell Therapy? Apparently there are US doctors, in patricular in Texas who are authorized to harvest your own fat cells after liposuction and get your own stem cells out of it the same day – these will then be applied IV or IT injection and may repair nerves and other tissues as well as it may reverse the demylielisation into remylielisationialisation damaged peripheral or central nerves, this may be the future of medicine as such as these injected stem cells can change into any type of needed cells.

Dec 11, 2017 · Peripheral Neuropathy - Stretching and Exercise in Neuropathy

Good move, @artscaping, I have gog myself a calm and lifely little dog, who loves to discover nature and meet the neighbours dogs. I try to join my kids and grand kids on sports events or musical activities, playing card or chess with them –  rather than running behindtennis, ping-pong or squash balls. When they go skiing, I may sit in the nearby terrace and enjoy the sceenery or watch them race.Such activities can reduce pain levels remarkeably.

Oct 5, 2017 · Anyone here dealing with peripheral neuropathy? in Neuropathy

Red light could be found under low-level-laser-therapy (lllt) or light therapy as such (LED and other non coherent ight sources) light has a positie effect on peripheral nerves, important is what the actual diagnosis of the desease is and what parameter are being set in the scientific studies published on the therapy.

Oct 4, 2017 · Anyone here dealing with peripheral neuropathy? in Neuropathy

Earlier this year I had a scanner laser made up for me emitting about 1000mw in the infra red, 810nm, I applied about 1joule per cm2 over my leggs and feet which took about 30min. I repeated this every 2nd day. I found that the burning pain increased in lower leg and feet. This usualy is a positive sign for the first treatment. I reduced the dose to 0.5 joule/cm2 and found similar increase again in burning pain. So I stopped for a week and starrted again with even lower dose. The burning pain increased again. After about 15 treatments I gave up. In contacting several MD`s specialized in lllt (low level laser therapy) I found that there were no neurologists or anaesthiologists who had any experiences or publications other than on damaged peripheral nerve repair but not degenerating as in PN. So I would have to check the internet again and MedPub peer reviewed publications on application of lllt in PN (any kind, including diabethic PN) before setting new parameters to continue trying. Meanwhile I had to go back to opioides but much lower dose in order to keep my quality of life in an acceptable level. I am sticking to the protocoll but cannot get certain products into France of Switzerland or Germany. So I take substitutes with similar contents and see what happens. Warm weather means lower pain level than cold weather, rain and cold winds. So i am moving South when the cold comes and keep my fingers crossed.