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Posts (3)

Mar 30, 2017 · IPF How To Cope with Sick Feelings in Lung Health

Ray I have tried the one on one with may pul doc but he says my afternoon fatigue drain and muscle aches etc are not result of IPF. i walk 1 to 2 miles a day 10 to 15 minutes at a time on flats and climb stairs for leg work. i will try to get appt at PHX Mayo as i feel they may have a different evaluation. at my doc i walk less than 1 minute on flat and 7 low grade steps then he evaluate from that.
good luck with your progress hope you get some relief

Mar 17, 2017 · IPF How To Cope with Sick Feelings in Lung Health

Hi Colleen
Thanks for your reply. I am not on oxygen. I had the aching in legs for 4 or 5 months before starting on NAC and before confirmation of IPF. The NAC did help my dizzy/out of balance episodes. I had chest tightness at very top of my chest since I had the pneumonia in 2015 but now more. I am 73 and walk 1 to 2 miles a day and up and down 15 steps at least 5 to 8 times a day out of breath of course. I quit working in Oct as I could not work full days and the stress made things worse.

Mar 16, 2017 · IPF How To Cope with Sick Feelings in Lung Health

I got a type pneumonia in May 2015 an never felt same. I work in a high stress long hours job and in 2016 could not work 4 hours without resting and napping. I August 2016 I suddenly got out of breath climbing steps, mowing doing anything with my arms. I went to ER extensive heart evaluation was fine BUT my x-ray was not good. Had a CT showed PF did all blood tests in Sep the lung Biopsy end of Sep showed I had IPF. I started taking NAC and my ER visit 2 weeks ago shows no change. NAC maybe working??
BUT I have most days miserable. Get tired easy, the feel sick all over (like bad flu), chest feels full and tight, BP high 190/100 then goes down after sleeping, (I sleep 7 hours solid) muscle aches, weak, dizzy etc. My doc says IPF does not cause that. I do not want to take Esbriet cause I feel bad now.
Anyone experience these feelings?