My name isPatricia and I have a little son that has intractable seizures. As you, I feel daily that I am not able to help him. He had surgery at Mayo in February 2017, but his spells didn’t end. Now he is taking Keppra and trileptal and the seizures are happening almost everyday. He needs another surgery… we are planning to go… but we are from Brazil and we don’t have any insurance, so it’s all paid by ourselves. We will have to go soon … and I am really afraid of this new procedure.
He is not going to school, or playing anymore… everything is triggering the spells.
I hope your daughter be cured as my son.