-Yes, blood work shows she is anemic, but otherwise normal
-thyroid is normal
-Surgery April 2015 removed endo tissue in 4 areas – excision via a lap (I am confused by the “or” but I am so new to this and only in looking at the mountain of medical records we submitted to Mayo in MN am I understanding how little I know! Gallbladder was also checked at same time and was healthy
-She eats a healthy diet – high fiber, low fat, LOVES sugar, but has cut back. We tried gluten-free, dairy-free, sugar-free, free-free and nothing seemed to change how she felt. She eats everything in moderation. The things she really limits: dairy, gluten, and sugar. She does not eat fast food. We cook at home a lot.
-We thought she had the best Dr. in our city for her type of situation, being a teen with endo, but after we were referred to Mayo, the Dr. became very defensive and combative. In looking at her notes, comparing them to other drs, they are very limited in what she has to say about our daughter as a patient. Some drs see her and have pages of notes, the GYN has 3 sentences. She prescribed her Aygestin 100 mg (up from 50) and that has been the only course of treatment since Jan. of 2015, but she wanted to jump her to Lupron – we want a 2nd opinion. She does not do internal exams.
I joined the FB page, thank you!
She has tried her hardest to remain active and goes to an arts high school where she is in a musical theatre program. She loves to dance and sing, but on days she has dance class, she comes home crying in pain. She can no longer drive to school.