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Posts (5)

Mar 1, 2017 · Glioblastoma Resection in Brain Tumor

I appreciate your time!

Mar 1, 2017 · Glioblastoma Resection in Brain Tumor

Is there a number to call to discuss treatment options and side effects and clinical trial options with someone at Mayo?

Mar 1, 2017 · Glioblastoma Resection in Brain Tumor

Thank you for the quick reply. I’m very sorry about your wife, but am always thrilled when I hear anyone has lived longer than expected with this disease. I think the frustrating thing for my friend is that everything is so individual and unique. I understand her desire to find some answers but, as you know, a lot of it depends on her individual responses. Peace to you too!

Mar 1, 2017 · Glioblastoma Resection in Brain Tumor

It seems like the clinical trials are for people who have already tried radiation and chemo. Does anyone know of a trial for someone who would rather pursue something instead of radiation and chemo? Thank you!

Mar 1, 2017 · Glioblastoma Resection in Brain Tumor

Hello, I’m helping a friend who was diagnosed with stage IV GBM on Jan. 26. She had resection and has been recommended to start radiation and chemo, which was supposed to begin on Monday. She wants to do more research before she decides to pursue treatment. I think she’s most concerned with how to know if her quality of life will be affected so badly by treatment that she’d rather have a few months of good quality of life than any additional time treatment might buy her. We live in Denver. She is 68, in excellent health (other than GBM) and great physical shape. The radiation oncologist said that was a good indicator of how well she would tolerate treatment. If anyone has any suggestions about treatment or resources in Colorado I would love to hear them.Would radiation alone cause fewer side effects and be a possible option? Or chemo alone? We are going to a local brain tumor support group today, which I hope will help. She is aware that statistically they are known to work better in combination but is open to not doing that if it helps her quality of life. I’ll also be asking questions of some of the members about clinical trials. Thanks for your help!