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Aug 17, 2018 · Diagnosed with sarcoma? Let's share in Cancer

Congratulations, Jeff! That is indeed wonderful news! All is well with me; I return to Mayo in November for scans. In April I elected to have a scar revision to the trach site, and am very pleased with the results. I don't know if you are on Facebook, but I follow a page called "The Voice Forum" (run by a Speech-Lang Pathologist with a specialty in voice disorders). Your story was shared on that page on April 20! Enjoy your summer and keep in touch! -Deb

Apr 17, 2018 · Diagnosed with sarcoma? Let's share in Cancer

Hi Jeff, Thanks for letting me know. It has truly been a remarkable journey. I I plan to share it with my family and friends, and wish you and your family all the best. I'm so happy for your health and your great attitude. Life is sweet! PS: It's nice to have a face to put with the name!

Jan 14, 2018 · Diagnosed with sarcoma? Let's share in Cancer

Hi Jeff! Sounds like you are doing great! I found the speech therapy sessions to be helpful; the goal being to smooth the roughness of my voice. Good training and tips on how to breathe more deeply and relax the neck muscles and not try to force the voice so much. Your running may be achieving the same things!
Keep in touch and continued good health to you!
Deb

Nov 6, 2017 · Diagnosed with sarcoma? Let's share in Cancer

Hi Jeff! I was just thinking about you! My appointment went very well- scan looks good and my surgeon is extremely happy with results. As a small piece of my cricoid cartilage remains, I will still be monitored, but I don’t go back for a year. He discussed doing some revision to tissue to open my airway a bit more and possibly an injection to damaged vocal cord to “pump it up” and potentially improve voice quality. Have you had any additional procedures? Today is my speech eval-I’ll let you how that goes. I agree, much to be thankful for! Deb

Oct 18, 2017 · Diagnosed with sarcoma? Let's share in Cancer

Hi Jeff,
Thanks for checking in and congratulations on your upcoming anniversary and strong recovery! How goes your running? I am doing well. In two weeks I have my first scan since surgery 6 months ago and I’m hopeful that it is clear and all is well. My voice quality is not much changed, so I’m going to see a speech/lang therapist next month for an evaluation and see what options there might be to improve that. Take care and continued good health to you! Deb

Aug 25, 2017 · Idiopathic Subglottal Stenosis - is there a current discussion group? in Ear, Nose & Throat (ENT)

You might also want to check out the blog “Fix My Subglottic Stenosis” by Brenda Sunby. (https://bsunby.wordpress.com) I don’t have ISS, but had a similar surgery to Brenda’s to remove a tumor in my larynx at the Mayo. I found her blog extremely helpful in understanding surgery, recovery and what to expect. It also helped me to put together a list of questions for my surgeon. She had her surgery at Cleveland Clinic. Best of luck to you. It can certainly be overwhelming, but good information helps.

Aug 9, 2017 · Diagnosed with sarcoma? Let's share in Cancer

That is awesome news! I am so happy to hear of your fantastic medical results and your continued recovery!
I am due back mid-October for a CT scan and hope to hear the same. I am back walking and was encouraged to get back to my 3 miles at nearly the pace I was pre-surgery. I still have some breathing and voice issues, but hopeful those will continue to improve.
Stay in touch!
Deb

Jul 14, 2017 · Cricoid Chondrosarcoma in Head & Neck Cancer

Hi Jeff, Great to hear that you are running again-that is truly inspirational! I’m a walker, and getting back at it, which feels great. Progress has been slower than I’d like, and definitely a challenge to impatient nature! I just saw my surgeon on Wednesday and will see him again in 3 months for a scan. You had mentioned that you had an appt coming up in mid-July; have you been back for that yet? Have a great summer!
Deb