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Jan 28, 2018 · Autoimmune Diseases and Fatigue in Autoimmune Diseases

Several years ago I was diagnosed with an autoimmune disease when a crater opened up on my lower back. It was and still is nameless and it includes necrosis. It eventually healed but the pain never subsidized. Last year I was diagnosed with rheumatoid arthritis in my hands.

Through all this I dealt with horrible excessive daytime sleepiness. I fall asleep with no warning. Being a mother, I was always a light sleeper. Now I fall into such a deep sleep that my family has trouble waking me.

I have been reading about Sjogrens. My dentist commented last month that he had never seen a mouth as dry as mine. This has been a problem for me along with dry eyes. I find that these are symptoms of the disease. Last week the diagnosis was anemia, 7.9. Very low.

I have also been reading about Modafinil. The fatigue is overwhelming. Getting a glass of water is a monumental feat. Has anyone taken this medication?? Did it help?? Thank you.

Oct 30, 2017 · Is it auto immune?? in Autoimmune Diseases

I’m Jeri. I am 75. Several years ago I started to have a lot of pain on a skin patch on my lower back. It went on for a long time and then opened in a huge crater with necrosis. Samples were sent to labs, including Mayo, with no conclusion. It was diagnosed as possible autoimmune. It healed but still hurts whenever any pressure is there like when I lie down to sleep. They ruled out Lupus.

Jul 16, 2017 · Chronic Back Pain for Years in Chronic Pain

Hi !! I’m Jeri. I have a failed fusion and sooooooo much pain. I have family but they either don’t believe the intensity or put me down for taking strong pain meds. I too feel i am at the end of my rope.
Peace

Jul 11, 2017 · Video Q&A about Chest Wall Deformities in Children in About Kids & Teens

I would like to join this discussion. My pain is too great now from another problem to elaborate. Thank you.

Apr 26, 2017 · Scoliosis - Introduce yourself and meet others in Bones, Joints & Muscles

I’m Jeri. I am 75 and was diagnosed with scoliosis about 15 years ago. I have many other spine problems and live with a lot of pain.

Mar 10, 2017 · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

I’m not sure if that question was for me but I will attempt to answer. I’ve had two spinal fusions. One left me with debilitating pain and the other one supposedly saved me from imminent paralysis. I have no residual pain from the second one. So, of course, i saw surgeons at that time. Now I see only a pain doctor for my back. He is encouraging me to see a “back doctor” even though I constantly say that I refuse any and all elective back surgeries. He’s a good, decent man and an excellent doctor but he keeps a tight reign on pain meds. As long as there are people on street corners selling, for instance, vicodin at $10.00 a pop, it will get more and more difficult for people like us to get help.

Mar 10, 2017 · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

I am also 75. And I envy you. My pain is so intense some mornings i can barely get out of bed. My mix of spinal stenosis, scoliosis, and degenerate disc disease does a number on me. I have a good pain doctor who is always trying to find some way to help me. I get easily discouraged.