Thanks so much for replying so quickly! I’m very sorry to hear of your struggles. I understand the time issue, as we are in the magic window, and time is running short now for a diagnosis with a good prognosis. I had never heard of anything like this, until it happened to my son. I know and believe someone, some where can help us. I believe in miracles and I have faith that this too shall end for the good. You might look into a physiatrist. They are in Rehab medicines and Botox injections have bought him a period of time without spasms. May God Bless you and I hope you can find rest and peace if even for the night.