About

First Name
Jen

Last Name
Taylor

City
State College

State/Province
PA

Country of Residence
United States of America

Postal/Zip Code
16801

Health Interests
Caregivers, Chronic pain, Healthy Living, Heart and blood vessel disorders, Hormonal and metabolic disorders, Immune disorders, Infectious diseases, Lung and airway disorders, Mental health disorders, Neurology (brain and nervous system), Women's health issues

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Posts (90)

Aug 6, 2017 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@lindham272 Thanks, Linda! I really appreciate the information! I'll keep you guys posted if I look into it anymore! ~Jen 🙂

Aug 5, 2017 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

I've been looking into stem cell therapy… they have a treatment facility, the Lung Institute, in Pittsburgh, which is near me. If memory serves me right, it cost about $7,000 (I could have that wrong though?).
Any thoughts/opinions?
~Jen 🙂

Jun 29, 2017 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@boomerexpert, I appreciate your way at looking at the transition from who we were while working to who we are now…with an altered identity (not rating it bad or good). But feeling good about who we are now is important & it’s something I struggle with. But I find myself feeling better & better all the time after reading through your posts. You all are giving me so much hope & inspiration! I’m so glad I found you, all! Best, Jen 🙂

Jun 27, 2017 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@windwalker Hi Terri, it’s quite scary to think that’s where I got sick from…but it sure would make sense. I guess we all suffer from immunodeficiency & lung impairment to varying degrees which creates the perfect storm & we end up with MAC/Bronchiectasis.

Something of interest to me, was that I found some of my medical records from 2009 (2 years into my illness) & the diagnoses listed Bronchiectasis. Well it wasn’t until this past Fall that they told me that I had Bronchiectasis. I’m not sure how I missed that…maybe they just didn’t tell me or I was so sick that I just didn’t matter to me!!!!

Anyways, I know it doesn’t do anybody any good to try & figure it all out but rather focus on where we are right now. The epidemiologist (which I LOVE) in me loves to piece things together, to map out the journey of an illness. I’m not trying to dwell on the “how, when, where & why’s” about it…it just interests me, that’s all. And I’m glad to hear your input/feedback, so thanks, Terri!

Best,

Jen 🙂

Jun 26, 2017 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@jkiemen Hi, Jo Ann & welcome! You have found a fantastic group!!! ~Jen 🙂