Badges (1)

About

Member has chosen to not make this information public.

Pages

Member not yet following any Pages.

Posts (12)

Mon, Apr 20 10:10pm · Worried about rising CEA levels in Colorectal Cancer

Hi Colleen
Several were removed
Only 1 was metastatic
Pathology did show it was colorectal cancer

Mon, Apr 20 8:29pm · Worried about rising CEA levels in Colorectal Cancer

Hi
I was diagnosed January 2015 will stage 4 colorectal.
I’ve had bumps in the road over the road but up until recently they have been detected early.
In February 2020 my Cea started to rise after removal of a metastatic lymph node removal from the AP window which was preformed robotically. My CEA is now at 64.5.
I’ve had a pet scan as well as 2 ct chest scans, 1 abdomen and 1 pelvis and nothing shows. My oncologist says we need to wait which is stressful especially with this covid thing.
Has anyone else had an unexplained rising cea and what was the outcome. I do understand cea is a sign of inflammation in the body and not always cancer .
Any input would be appreciated
Thanks
Sally

Thu, Feb 20 11:20am · So scared: Just found 5cm tumor in rectosigmoid colon: Tips? in Colorectal Cancer

Hi
I totally understand why you are scared.
A sudden diagnosis can be overwhelming.
The same thing happened to me a little over 5 years ago.
It is probably best to remove the tumor as left in it can grow and become inoperable.
At least you will know what it is and determine how to move forward
Make sure you have a skilled surgeon that you trust
Aloha
Sally

Aug 20, 2018 · Dietary Changes Before and After Colon Cancer in Colorectal Cancer

Hi all
Following my diagnosis of stage IV colon cancer in early January 2015 my eating habits have changed and I believe it has helped although really can’t be measured.
However I think it is only one piece in what I do.
I try to eat organic as much as possible with lots of fruit and vegetables and no red meat .
In addition I exercise , get accupuncture, do yoga
And really try to listen to my body and remain vigilant.
I have been blessed to have a wonderful health care team as well

Jul 31, 2017 · Living with colorectal cancer - Meet others & come say hi in Colorectal Cancer

Hi starlight

We all need to make choices in this journey that are best for us
And be at peace with our decisions
I hope you have a good support system in place to help you through this difficult time
You will be in my prayers
Sally

Jun 1, 2017 · Worried about rising CEA levels in Colorectal Cancer

Hi Diane
I was diagnosed with stage 4 colon cancer in jan 2015
My oncologist orders my blood work to be done every 3 weeks and always includes the CEA test as well
This number makes me very nervous but it is really only another tool and I have found other things can cause it to rise like a dental infection or even a sinus infection so I try my best not to get too anxious when there is a spike upwards
My oncologist tends to rely more on scans and blood work and my overall well being and keep me grounded to not get too excited
However a steadily increasing trend does merit attention
Keep us posted
Stay positive

May 2, 2017 · What's your colorectal cancer screening story? in Colorectal Cancer

My first screening was at the age of 45 as there was a family history of colon cancer and I was a believer in preventive medicine. They found a polyp
Which turned out to be benign . I had another a year later followed by the 3 year point and was on a 5 year routine colonoscopy schedule as nothing had been found after that initial
Benign polyp. Long story short I was diagnosed in January of 2015 with stage 4 colon cancer. It was unbelievable but true. Seems my cancer was located at the very end of the colon in the cecum and was most likely missed . So word to the wise make sure there is a picture attached to the report documenting that the end of the colon had been reached. Sorry to say they could not produce a picture to support this in my prior colonscopy

Feb 25, 2017 · Problems 3 months after colon resection surgery: Help in Colorectal Cancer

I also struggle with ongoing constipation which started right before Christmas. my diet is primarily plant based and lots of fiber
My doctor suggested I try a low residue diet which was difficult for me but I gave it a whirl
Didn’t help at all
So I am back on my healthy diet and find that drinking lots of water and staying active and moving really helps
And when all else fails try a dose of miralax
Fortunately things are getting better for me
Good luck
Sally