Member has chosen to not make this information public.


Member not yet following any Pages.

Posts (127)

4 days ago · Housing while in pain program. in Chronic Pain

@bikerchicl, I visit Mayo in Rochester MN every year. A couple years ago Mayo suggested I go through their pain management program. You do have to stay in town during this time.
Before committing to this program, check with your insurance company. Mine, Blue Cross, would not pay for this. Needless to say I wasn’t able to afford to go through this program so I can’t comment on it at all.
As I said, I visit Rochester routinely, every 3 months. I’ve been watching new buildings going up across the street from St Marys hospital where the pain management program is at. Somebody at the hospital told me that these buildings were for lodging for patients in this program. You should call and inquire about this if MN is your destination.
Wishing you the best, hope you can find answers.

Sun, Aug 25 12:18pm · Fibromyalgia in Chronic Pain

I took a two day fibro class at the Mayo Clinic in Rochester. My doctor suggested it and helped get me enrolled, there’s a 3 month waiting list.
Not sure about anything being online.

Mon, Aug 19 11:37am · Morton's Neuroma in Bones, Joints & Muscles

Exact same here, right down to the shoes! I didn’t do any surgery, just the shoes. I’ve had great results

Wed, Aug 14 10:09am · Reclast Infusion in Bones, Joints & Muscles

@jmanj yes you can only take the reclast for a few years. You might want to ask about the number of years as things are always changing. I did not increase bone density but I maintained for 4 years. I took no other med for op after the reclast. This last year I went down, so they think I should do the prolia shot now. They say I cannot repeat the reclast infusion. I was at -2.5 and went to -2.6.

Tue, Aug 13 3:59pm · Reclast Infusion in Bones, Joints & Muscles

@ginanne I had the reclast infusion for 5 years, once yearly. I never had any bad experience afterwards and just went about my business. I’ve done the reclast for as long as is allowable and just finished the 3 year holiday after it. The reclast helped maintain my bone density for where it was at. Dr. now is wanting me to take the prolia shot. After reading the side effects and talking with my dentist about prolia I won’t be doing that.

Sun, Aug 11 2:43pm · Prolia treatment for osteoporosis in Bones, Joints & Muscles

@ritafarmer did you mean to say “this is only a problem if you are having teeth pulled” and not “if you are having teeth filled”?

Sun, Aug 11 2:39pm · Prolia treatment for osteoporosis in Bones, Joints & Muscles

@ritafarmer my dentist told me necrosis of the jaw is a problem for you if you need dental work done that would involve anything with the bone, like an extraction because your bone can’t heal after the extraction. I’ve had fillings and a root canal done and although I’m not taking any of these drugs now my endo doc wants me to start with Prolia. My dentist said no and that was because there will be the day when I have to have teeth pulled out, like the root canal tooth, and then the bone will not heal where the tooth was pulled. I have other teeth with no fillings or crowns and she said they would be affected in the same way should they ever be extracted.
I have been on Reclast for 5 years and now off of it for 3 years. In those three years I’ve had fillings and crowns done with no necrosis problems. So, I believe it’s not from just having fillings or crowns done. Hopefully I don’t need to have any teeth pulled, with fillings or not, and face the consequences. All the same, I am saying no to any more of these drugs.

Sun, Aug 11 9:43am · Prolia treatment for osteoporosis in Bones, Joints & Muscles

@mipprolia my doctor wants to start me on prolia. I read all about it. Had a dental appointment and mentioned this to my dentist. She is very much opposed to this for me. I have a tooth that might need to be eventually pulled. She says that by taking Prolia, my jaw bone where a tooth was pulled would not heal.