Hope everyone is having a good day. Wish we were all pain free.
After 2 1/2 years I am now on 2 mg of prednisone daily. I am feeling bewtter and would say have improved 90%. I can say that today, I don't know what tomorrow will bring.
I have not had any luck going down to 1 mg and I like so many of you don't want to have a relapse and have to return to 5mg or higher.
Last time I did get to 1 mg and so much pain came back that I did have to increase back up to 5.
I'm wondering if at 60 yrs old I am going to have to take 2 mg a day for many years, if not ongoing.
I know the side effects are bad, but do we think the side affects of osteporosis would be devastating at 2 mg?
I do have a small fatty pocket at the base of my neck. I have read that this is a side effect.
I am taking a 50 mg of tramadol every night. I don't like that I am in that habit, but I feel I sleep better. It is an addicting medication though. It may not be a strong pain killer, but still addictive.
I don't think my rheumatoid Dr knows a lot about PMR, nor does anyone that I can find.
My wishes are for a good day for all that are dealing w PMR. Know that you are not alone and you can get better.
Yes, prednisone is a wonder drug for this illness, but no medication comes wo side effects, sadly.