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Feb 5, 2017 · #MayoClinicNeuroChat about Brain Aneurysms in Stroke & Cerebrovascular Diseases

I had a giant aneurysm in the cavernous sinus treated with 4 pipeline stents. I had pain for a year before the surgery as the aneurysm was pressing on trigeminal nerve. This was 8 years ago and have had constant pain from both trigeminal and occipital neuralgia and my pain DR says I have central pain/ post stroke pain? 2 months after surgery I got severe burning pain in both knees and over past 8 years it has spread to my feet and hips and is equal on both sides. Location of the aneurysm and the complicated surgery are cause he says, the last of the 4 stents wouldn’t open and they spent over two hours trying to open the stent with every option available including balloons and may have damaged other areas and nerves in cavernous sinus including thalamus?. The cavernous sinus is where all the trauma started and he said that is why I have all the pain still 8 years later and it has spread to lower body. Any thoughts on surgery in cavernous sinus and central pain? Was told that no Dr. would ever do normal surgery there due to complications and the stent was only option. 24/7 head pain and lower body too, not much of a life.