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Bone, joint, and muscle disorders, Healthy Living

Posts (63)

Mon, Jan 7 11:42am · How to handle questions beyond your experience in Mayo Clinic Champions

Speaking candidly about your health care experience is powerful. It helps others understand from someone who has been in their shoes. At times, you may get questions about Mayo Clinic that are beyond your personal experience, but you don’t need to know everything. There are several quick ways to direct people to more information if they are seeking care at Mayo Clinic.

Mayo Concierge Services

Mayo Concierge Services is a resource that provides travel, lodging and tourism information. Representatives also help patients navigate the Mayo Clinic experience and set up a Patient Online Services account. You can reach Mayo Concierge Services via email or the Patient and Visitor Guide page. The latter option features a new webchat tool.

You can access the concierge live webchat during normal business hours on the Patient and Visitor Guide page. The chat window is in the lower right corner of the page and will only appear when an agent is available:

Displaying the Webchat on the Patient and Visitor Guide website

Mayo Clinic website and Mayo Clinic App

The Mayo Clinic website and the Mayo Clinic App are great resources for those looking for more information. Both are comprehensive resources for symptoms, diseases and conditions, treatment options, and more information on Mayo Clinic. The Mayo Clinic App is available for Android and Apple devices, and it’s available in the Apple App Store and Google Play.

Talking about Mayo Clinic

One of the best resources others have to learn about Mayo Clinic is you. It can be helpful for you to have some points to highlight when you only have a few minutes to talk. Review some of the top reasons why Mayo Clinic is chosen for care. There are many great reasons, but it’s important to speak to the ones that resonate with your experience.

Dec 11, 2018 · Tips for building a presentation in Mayo Clinic Champions

Woman creating a presentation

Your health care experience makes you an expert. There’s so much others can learn from your personal story. The following advice can help you build your health story as a presentation.

Getting started

Ask yourself what is the big idea that you want the audience to take away from your presentation. Writing a one-sentence summary of this big idea helps develop what you really want to say. Below are a few examples that can help you find your big idea:

  • Knowing I’m not alone gave me confidence.
  • I’ve been there, and there is hope.
  • We’re misunderstood, but we can hold each other up.
  • Sharing our health care experiences gives us strength.
  • You have to be your own medical advocate.

Developing your presentation

While discovering what your big idea is, identify three main points that build on it. This will be what you want your audience to take away from your talk. Expand on these while you build out the presentation. Consider these questions while creating your presentation content:

  • How much are you willing to share?
  • What is most meaningful for your audience?
  • Why does it matter to them?
  • Does this make them care about the presentation?

Enhancing your presentation

Once you’ve developed the main content for your presentation, think about if there are ways to enhance it. Focus on these components to deepen your presentation:

  • How does your story flow?
  • Do you have photos that can enrich your story?
  • Are there statistics that lend themselves to your experience?
  • Is there any new research or treatment happening in that area?

As a Champion, you have a powerful story to tell, and you can make an impact in your community.

Oct 26, 2018 · Monthly Mission: Creating a speaker biography in Mayo Clinic Champions

Helpful Tips written on a sticky note

Having an interesting biography can be useful for those who speak at support groups or conferences. It also can supplement your social media profile. Mayo Clinic Champions have access to tips for creating a biography that walk through elements to include, how to make it stand out, and a template to get you started.

Your Monthly Mission is to read through these tips and start putting together a stand-out bio that reflects who you are. For inspiration, view examples of Champion biographies below.

Linda Wortman
Lung Cancer Activist
Linda is an avid bicyclist, cross-country skier, hiker and runner. Linda, who has never smoked, was shockingly diagnosed with lung cancer in 2008. Since then, Linda became inspired to run a 5K race in 50 states and a 10K race in every continent. Linda was also asked by Mayo Clinic and Conrad Anker to climb Mt. Kilimanjaro’s 19,341’ peak. Passionate about ending the stigma associated with lung cancer, Linda dedicates much of her time to raising awareness about the disease and started the Wortman Lung Cancer Foundation and Running Lungs events to raise critical funds for lung cancer health and research.

Tony Hart
Proud Preemie Father
Severe trauma can happen to new parents. Tony Hart is a father of a premature born girl who came eight weeks early; weighed 2 pounds, 7 oz.; and was hospitalized for 42 days. Shell-shocked from the experience, Tony is passionate about helping other parents with preemies get through the trauma of the happiest day being indefinitely linked to the hardest weeks of their lives. Tony is an expert in skin-to-skin (“kangaroo”) care, spending endless hours at the hospital and fostering hope with his wife as they embrace a new normal.

Oct 17, 2018 · Champion Spotlight: Terri in Mayo Clinic Champions

Terri is a Champion and Mayo Clinic Connect Mentor who was looking for answers and community after her diagnosis. She’s now the one providing strength to others.

Photo of Terri and her dog

Champion Spotlight is a series that features Mayo Clinic Champions and celebrates the effect they have on people’s lives. Tony Hart, Mayo Clinic Champion specialist, talks with Champions who have provided hope for others in their own ways.

TONY: You’ve been a Mentor on Mayo Clinic Connect for over a year now, how did you get started?

TERRI: As a patient diagnosed with bronchiectasis and presenting with avium mycobacterium infection, I sought online support on Mayo Connect. At that time, I was frightened and searching for answers as to how to manage this disease.

I was warmly greeted by a mentor named Katherine. And, soon, my fears were being replaced with knowledge. Katherine used to always say, “Knowledge is power.” She was so right. She taught our group how to be our own best medical advocate. Sadly, we lost our dear Katherine in 2017. Because of my many posts on Connect, I was asked if I would be her successor. Though her shoes were huge to fill, I felt honored to step in.

TONY: You’ve certainly done your part to return kindness as her successor. Why did you decide to become a Mayo Clinic Champion and share your experience on Connect?

TERRI: I have been battling a rare lung disease for the past thirty years, most of those years I went without a proper diagnosis and treatment plan. By 2013, my lungs had deteriorated to the point of possibly needing a double lung transplant. That was the year I looked to the Mayo Clinic for help. I had read online that they were the best medical institution to go to for difficult health issues. I began treatment there; and they were able to divert the need for the transplant. The treatment plan also increased my quality of life ten-fold.

Being a patient at the Mayo was a real life changer; for that, I am eternally grateful. To express my gratitude, I became a Mayo Clinic Connect Champion and Mentor. It is my way of giving back. I want others to have a chance at improving their health and in some cases; survive their illnesses. My way of helping is by educating patients on how to advocate for themselves and manage their illness. I also spread the word about the Gold Standard of care that can be found at Mayo Clinic.

TONY: Being a mentor feels like a great fit for you. Is there anything that compelled you to tell your story offline to others?

TERRI: It is important to share experiences that help others, especially when it comes to their well-being. I have shared my story of illness, recovery and living with chronic disease many times on Mayo’s online Connect group. Besides this worldwide community, I also share with my local community. I attend the Better Breathers Club that meets once a month at a local hospital. It is hosted by the American Lung Association. I chaired a meeting for them this year, and my story served as a beacon of hope in trying to live a better quality of life with lung disease.

TONY: What stands out with Champions and Mentors to you?

TERRI: They have a big heart and are gracious to take the time to be there for others.

TONY: Is there something you find most rewarding about helping others?

TERRI: You know it is not as easy as one might think to be on medical disability. I know that, for me, I was feeling a lack of self-worth. I questioned how I could fit purpose into my life again. Mentoring for Mayo was my answer. This has been the most rewarding thing I have ever done outside of motherhood. When I read from Connect members that their life has improved due to suggestions found on our site, I am happy. When I witness a turnaround of a terrified patient who becomes calm because they have gained better tools to deal with their illness, my heart swells. Most patients that come to Connect face serious, sometimes life-threatening illnesses. Who wouldn’t feel proud to walk beside them?

Read Terri’s member spotlight

Learn more about Terri and her work as a Mayo Clinic Connect Mentor in her expanded interview.

Mayo Clinic Champions love to hear what others are doing to spread hope. If you’d like to tell your story, comment below or email the Champions program, and you may be the next Champion Spotlight.


Sep 24, 2018 · Monthly Mission: Why did you become a Champion? in Mayo Clinic Champions

Champion Badge

Mayo Clinic Champions make a difference for others. They understand what others are going through with their health care journey because they’ve been there. People join the Mayo Clinic Champions program for many reasons, but the program would like to hear why you chose to join.

Some Champions join to:

  • Reach others to help them find answers
  • Learn more about Mayo Clinic
  • Share their experiences to show others are not alone
  • Spread the news about what Mayo Clinic has done to help you

Or there are many other reasons that may be unique for you. Share why you became a Mayo Clinic Champion in the comments below or email the Mayo Clinic Champions program.

Aug 30, 2018 · What's new at Mayo Clinic: August 2018 in Mayo Clinic Champions

The latest news from Mayo Clinic for the month of August.

Featured news

3D image of BRCA2 Breast Cancer susceptibility gene 2 tumor suppressor bound to DSS1

“Triple-negative breast cancer is an aggressive type of cancer that cannot be treated using targeted therapies… It is also associated with a high risk of recurrence and a poor five-year survival rate. Our findings provide the basis for better risk management.”

–Fergus Couch, Ph.D., a geneticist at Mayo Clinic

Read more about how the Mayo-led research team identifies genes that increase risk for triple-negative breast cancer.

News in a minute

Aug 16, 2018 · Correcting the record on CNN story in Mayo Clinic Champions

Mayo Clinic Flag

On Monday, CNN published a series involving a former patient titled Escape from the Mayo Clinic.

Mayo Clinic publicly responded to the story labeling it as inaccurate and incomplete reporting. In a letter sent to CNN, Mayo Clinic points out the reporters disregarding and not investigating key facts including:

  • Allegation of the mother’s abuse of the patient
  • Mayo never denied a request from the family to transfer the patient to a different facility
  • The mother was removed from the hospital after exhibiting escalating disruptive and aggressive behavior

Read the full letter sent to CNN.

Recently Minnesota Public Radio (MPR) also reported on the story with additional facts and information pointing out inaccuracies and “red flags” when the mother had written to MPR in March of 2017 about doing a story about her daughter being “pushed out the door” of Mayo after their insurance changed.

Please help us correct the record by sharing the MPR story or the related Mayo Clinic posts below on your social media accounts.

Aug 1, 2018 · Talking about Mayo Clinic in Mayo Clinic Champions

Talk TilesWhether you are already talking about Mayo Clinic or you want to start, it’s helpful to have some points to highlight when you only have a few minutes to talk. Here are some reasons why more than 1 million people choose Mayo Clinic for their medical care each year:

  • Experience
    Specialized experts cover virtually every specialty and subspecialty. They are experienced in what they are diagnosing and treating, including rare conditions treated in few other places.
  • Finding answers
    Many people find answers at Mayo Clinic that they struggled to find anywhere else. Of all patients who came to Mayo Clinic for a second opinion, 88 percent received a new or refined diagnosis.
  • Faster, coordinated care
    What might take months elsewhere often can be done in days at Mayo Clinic. Health care provider visits, testing, surgery and hospital care are available in one place.
  • Top hospital ranking
    You know the high quality of care you received at Mayo Clinic. With Mayo Clinic consistently being recognized among the top hospitals in the nation, you can be confident that those you talk to will get that same care for their treatment.

Finding your reasons

Learn more about why others choose Mayo Clinic. There are many great reasons, but it’s important to speak to the ones that resonate with your experience.