Thanks for the info
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Thanks for you reply. I am not very pleased with the pulomolist at the local hospital. They told me one thing and did something else. That is why I am going to mayo next month. I have begun to send all my tests and results to mayos pulmo dept and I will be contacting them the first of the week to see if they want me on this much steroids. Glad to here about the side effects aren’t too bad.
Hi Oliver I have just received all my results I have IPF early stages my lung tests at 89%, have bilateral scarring, some levels in my blood are indicating lupus. This is in my family’s genes. I have some symptoms cough, winded after light exercise, I was just put on predizone 60mg a day. I have a future appointment at mayo jack later next month. I have been looking at the drugs and I have a ton of questions. I am 60 175lbs 5’10” how has the esbriet for side effects. I’m reading vomiting diarrhea sensitivity to sun. How has it been for you. Arty
Very like myself, my heart dr said my heart was fine but they saw something on my c scan and a pulmologist came in a said I has IPF. The first thing is you need to have more tests to see exactly what is what. Scaring in the lungs can be caused by many different things and with different outcomes
There is a series of tests that need to be done to confirm the diagnosis. I was recently told I have IPF even though the original CT Scan shows fibrosis in my lungs it doesn’t necessarily mean I have IPF I am waiting for my blood work and a HRCT scan to confirm. I show some symptoms but not others So be sure to do what needs to be done to be sure