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Jan 31, 2017 · Median Arcuate Ligament Syndrome (MALS) in Digestive Health

Hello @kanaazpereira,

Great Info. She eats through an NJ Tube 90% of the time now. She just wants to be able to finish High School with normal hopes — eating again and a date to the prom. She went from a size 10 to 0, losing 30 pounds in 9 months. She has been told she has SMA, and a possible clot in her SMV. As parents, we just want her safe. Her first diagnosis was Gastroparesis, and when the medicines did not help, she researched and requested the Doppler Ultrasound. That was the moment her doctor called us and told us she had MALS. She was normal and healthy prior to July 2015. Thank you again!

Jan 31, 2017 · Median Arcuate Ligament Syndrome (MALS) in Digestive Health

Hello @kariulrich,
Thank you so much for all of the information. We are so new to all of this. The biggest identifying piece to our puzzle was the doppler ultrasound at 414+ velocity and then the CT-A Scan. We look forward to meeting with Mayo, discussing our options and learning the pros & cons for open vs. lap surgery. The difficult part is she is living on an NJ Tube, due to the pain and nausea when eating. We are finding hope each day hearing others’ stories. Were you able to eat again after the surgeries?

Jan 27, 2017 · Median Arcuate Ligament Syndrome (MALS) in Digestive Health

Hello, my 16 yr old Daughter has been diagnosed with MALS. We are coming to Mayo, MN, in February for an open surgery with a Vascular Surgeon. I, too, am interested in connecting with others to best understand this condition, follow up care and research resources. I would be interested in the webinar. Thank you Colleen!