Great Info. She eats through an NJ Tube 90% of the time now. She just wants to be able to finish High School with normal hopes — eating again and a date to the prom. She went from a size 10 to 0, losing 30 pounds in 9 months. She has been told she has SMA, and a possible clot in her SMV. As parents, we just want her safe. Her first diagnosis was Gastroparesis, and when the medicines did not help, she researched and requested the Doppler Ultrasound. That was the moment her doctor called us and told us she had MALS. She was normal and healthy prior to July 2015. Thank you again!