Badges (1)

About

Member has chosen to not make this information public.

Pages

Member not yet following any Pages.

Posts (6)

Oct 10, 2018 · Unusual side effect of Rifampin in MAC & Bronchiectasis

I was taken off the Rifampin back in 2010, don't remember what it was replaced with. My MAC returned end of 2013. Treated again with 3 drug protocol (w/o rifampin) plus inhaled Amikacin. I have been clear since 2014 🙂

Oct 9, 2018 · Unusual side effect of Rifampin in MAC & Bronchiectasis

No I never went back on rifampin. I have been MAC free for 4 years, but continue to deal with Bronchiectasis and a low immune system. I am very active, I just worry about being coming in contact with sick people and coming down sick myself.

Sep 17, 2018 · Unusual side effect of Rifampin in MAC & Bronchiectasis

Several years ago I had similar reaction with blood blisters in my mouth. At the time it was attributed to Nystatin (oral anitfungal rinse). It was over 5 years ago, but I don't believe I was on Rifampin at the time. I had eliminated that drug several years earlier because I had a drop in white blood cell count. Hope this helps.

May 30, 2017 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Amakasin worked for me. I was diagnosed with pseudomonas in early 2016. The first time they gave me a 14 day Rx of ciprpfloxin. I I started feeling better in a few days, but within 2 weeks of finishing the Rx the symptoms started coming back. Amakasin is very expensive. I had very good insurance at the time, but I still had over a $1000 co-pay. I had to inhale it via my nebulizer 2x a day, for 30 days. IT WORKED and worth every dollar. Pseudomonas is commonly diagnosed with people with bronchestisis and difficult to eradicate. Good luck. Best, Elaine

May 9, 2017 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Very interesting article, thanks for passing along. Have filed article for future reference, hope I won’t need it, but you never know.

Feb 26, 2017 · Have Bronchiectasis, recently diagnosed with pseudomonas in MAC & Bronchiectasis

I too was diagnosed with pseudomonas after having MAIC two times. The first treatment for pseudomonas was a 14day Rx of Ciprofloxacin. I felt better immediately and the symptoms went away. Within 2 weeks of finishing my Rx the symptoms started to come back. My speutem was retested and I still had pseudomonas. I was prescribed the Tobymycin Inhaler for 30 days. I have very good insurance but my out of pocket was over $1000. It was worth every penny. The Tobymycin worked and I have been feeling major symptom free since I finished it May 2016.