I was taken off the Rifampin back in 2010, don't remember what it was replaced with. My MAC returned end of 2013. Treated again with 3 drug protocol (w/o rifampin) plus inhaled Amikacin. I have been clear since 2014 🙂
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No I never went back on rifampin. I have been MAC free for 4 years, but continue to deal with Bronchiectasis and a low immune system. I am very active, I just worry about being coming in contact with sick people and coming down sick myself.
Several years ago I had similar reaction with blood blisters in my mouth. At the time it was attributed to Nystatin (oral anitfungal rinse). It was over 5 years ago, but I don't believe I was on Rifampin at the time. I had eliminated that drug several years earlier because I had a drop in white blood cell count. Hope this helps.
Amakasin worked for me. I was diagnosed with pseudomonas in early 2016. The first time they gave me a 14 day Rx of ciprpfloxin. I I started feeling better in a few days, but within 2 weeks of finishing the Rx the symptoms started coming back. Amakasin is very expensive. I had very good insurance at the time, but I still had over a $1000 co-pay. I had to inhale it via my nebulizer 2x a day, for 30 days. IT WORKED and worth every dollar. Pseudomonas is commonly diagnosed with people with bronchestisis and difficult to eradicate. Good luck. Best, Elaine
Very interesting article, thanks for passing along. Have filed article for future reference, hope I won’t need it, but you never know.
Feb 26, 2017 · Have Bronchiectasis, recently diagnosed with pseudomonas in MAC & Bronchiectasis
I too was diagnosed with pseudomonas after having MAIC two times. The first treatment for pseudomonas was a 14day Rx of Ciprofloxacin. I felt better immediately and the symptoms went away. Within 2 weeks of finishing my Rx the symptoms started to come back. My speutem was retested and I still had pseudomonas. I was prescribed the Tobymycin Inhaler for 30 days. I have very good insurance but my out of pocket was over $1000. It was worth every penny. The Tobymycin worked and I have been feeling major symptom free since I finished it May 2016.