Badges (1)


Member has chosen to not make this information public.


Member not yet following any Pages.

Posts (3)


Jae, We have a support group who meets once a quarter at St. Joseph's hospital in Atlanta. We have a vast amount of information which is necessary with this illness. Our group also includes a doctor who has NTM. Send me a private message if you are interested.

Jan 8, 2018 · Questions about treatment, alcohol and doctors in Phoenix in MAC & Bronchiectasis

Ling, my doctor at National Jewish is monitoring the development. She said if the MAI load in the sputum sample was 50 and under for Mai/Mac that she would NOT recommend the big three at this time. I have 0 symptoms but there is a lot of progression over the past three years with more nodules and spreading.

Jan 8, 2018 · Practical questions about nebulizer, shower head filters & gargling in MAC & Bronchiectasis

I am astounded at the confusion surrounding cleaning of the nebulizer. I think even the experts change their minds frequently. I was told at National Jewish last fall that Dawn liquid detergent was the chosen cleaner over vinegar and if equipment is dry after cleaning, there is no chance of reinfecting with MAC. So why would it matter about rinsing with boiled water? I bought a baby sterilizer and now NJ says the preferred method is microwaving. My daily process has been to let the arobika and nebulizing equipment soak about 15 minutes in warm water with Dawn liquid detergent. Rinsing with regular water then using the bottle sterilizer for 8 minutes with distilled water. Then I put a nail fan on the parts to dry them. Yikes….Now I am concerned once again about what to do. Boiling water seems like a LOT of work.