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Mar 13, 2017 · Chiari Malformation type 1 in Brain & Nervous System

Lol… Sorry, if you just read around you’ll find many of us have debilitating headaches, dizziness, confusion, skin sensitivity, not really able to use arms or hands much from pain and weakness, temperature control problems, unusual bruising or ability to turn bruising into “blunt trauma”, usually from a fall, nausea, blurred vision, light sensitivity, minor/severe balance issues, seizures, light-headedness, passing out, scoliosis and other related conditions, drooping face, drooling, going right when the GPS says left, food tastes funny, slight drooling, sleep problems, and most of all? PAIN. INCURABLE PAIN. Without any cures, when you look around you’ll see surgery usually makes it worse, this condition makes doctors turn you into a drug addict because there’s nothing they can do. My brain’s on the list for scientific donation at the Miami brain bank to try to help a generation sometime, somewhere because it’s not happening now. There aren’t even any clinical trials. I hope this helps, and may explain other weird or painful things that may begin to happen. But if you have insurance? FIND A SPECIALIST. There’s a new center in Wisconsin and UCLA just opened a center. This is only the beginning. I have 3 college degrees, can’t work, and I think my IQ of 156 is now more like 56.

Jan 13, 2017 · Chiari Malformation type 1 in Brain & Nervous System

Oh,so painful… at 10mm and from everything ive read, the surgery just makes room for a further fall! Ive had the same problem with “yes, you have to have it” to “you are nowhere near needing it”. Ive stopped all meds and the nearest Chiari Center is in Milwaukee, Im SW of Chicago. Unfortunately, no matter your choice: there is no “cure”. Im done trying to treat symptoms instead of the cause, and some nights i just sit and cry from the pain and symptoms. I have multiple conditions so finding 1 solid treatment plan has been impossible, and no doctor has been able to come to any solid conclusions. Wake up happy you are still breathing!