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Posts (31)

Sep 30, 2017 · Anyone here dealing with peripheral neuropathy? in Neuropathy

@You were on a rather low dose of abstention, and I hope a higher dose is helping you.

Sep 30, 2017 · Anyone here dealing with peripheral neuropathy? in Neuropathy

@So glad you are sleeping better. Neuropathy pain is agony!

Sep 30, 2017 · Anyone here dealing with peripheral neuropathy? in Neuropathy

@I also took 1800mg abstention daily plus the Fentanyl pain patch and was practically comatose. I had the same symptoms you do but although I got good relief and could sleep, I was unable to function. My doc cut dose in half but have much less relief. I also received a neurostimulator a few years ago.

May 17, 2017 · Anyone here dealing with peripheral neuropathy? in Neuropathy

@Hi there mfobrien36! I was a bit shocked when I saw your post about DMSO! This very potent and very putrid stuff has been used on Thoroughbred race horses for many many years, and is quite toxic. Yes, it works on lameness, muscle soreness, serious head injuries, laminitis and other equine afflictions. These horses develop very foul garlic breath also. But in both horses and humans, DMSO can cause kidney and liver damage, blood problems and other maladies. My family had harness racing Standardbred horses when I was younger, and DMSO was always a last ditch remedy. Nor did this stuff seems to work very well. Please be careful if you decide to try DMSO, it is an animal drug. Good luck with your research, @mfobrien36! None of us PN sufferers should ever give up because well, you never know! Best Wishes, Peggy

May 8, 2017 · Anyone here dealing with peripheral neuropathy? in Neuropathy

@Hi Jodi! I was so glad to hear back from you! ReQuip is a prescription drug originally subscribed for Parkinson’s Diseaseor any other spasmotic disease of the nervous. I don’t know much abour ReQuip, except to know it calms and relaxes the spasms. You start out with a low dose,(I also began Valium at the same time) and work up to a dose that finally helps you.ReQuip is very good, but my doctor had to keep increasing the dosage. Requip works on the nerves that cause those awful spasms.That’s about all I know at the moment. Thank God you had a peaceful night–Praise the Lord for that! Why not a bar of soap, I am willing to try Even banana peels under my pillows instead of drugs! Good luck, Jody. Hope you get to try ReQuip, it is a really good drug at the right dosage. More good nights ahead, Virtual Hugs, Peggy

May 7, 2017 · Anyone here dealing with peripheral neuropathy? in Neuropathy

Hello @16jody! I fully sympathize with your miserable condition! I suppose you have been tested for Restless Legs Syndrome, which can give a person the worst nighttime torture. If you haven,t tried ReQuip–I am currently taking this–maybe your doc can prescribe
a low dose of Valium at bedtime. I am also taking over–the–counter magnesium supplements. The magnesium really helped my spasms more than anything. And no side effects. Right now I can,t think of anything else, except prescription drugs. Good luck, 16Jody,
and I will be thinking about you. Oh–the magnesium is for the severe muscle spasms I have. Best Wishes, Peggy

Apr 22, 2017 · Sudden Hearing Loss in Ear, Nose & Throat (ENT)

@Good luck to you, Arlys! I hope things work out great for you! Wish I lived closer to Mayo, even though there are some really good hospitals in my area. I just happened to have very bad luck with ear surgery! If I could do it all over again, I would have begged, borrowed or stolen the money to buy a plane ticket to Minnesota and have things done right. You will do just fine! Have a good week, and enjoy the spring days! Best Regards, @Peggy

Apr 22, 2017 · Sudden Hearing Loss in Ear, Nose & Throat (ENT)

Hi Cynaburst, and welcome to Mayo Connect! I too, am totally deaf in my right ear, so totally deaf no hearing aid could possibly help. My right ear is also almost completely deaf. About 13 years ago I went to a famous hospital in New York City to see supposedly the best cochlear implant specialist on the East Coast. It was a miserably long trip and a miserable experience. This doctor decided to install (dumb word!) bilateral BAHAS instead of a cochlear implant. Making a very long story short, these BAHAS were not strong enough for me to hear anything, zilch, nothing. Not only that, this very–well–known doctor implanted them right in the back of my head, and boy, they still hurt and are very uncomfortable. I ended up giving the little boxes to a young girl whose insurance didn’t cover the cost of them. And I went back to regular hearing aides. I had ear problems since I was a baby; I was born with a cleft palate and some craniofacial deformities from a genetic defect carried by my mom. I have yet to have these useless gadgets taken out, as no other ear surgeon wanted to touch me when they found out who this doctor was. And this woman denied, of course, ever having these ineffective BAHAS done at “Her Hospital” when a second opinion doc called her personally! Cynaburst, don’t let my experience make you hesitate to get hearing implant surgery! But I would make sure your hearing loss would be compatible with a BAHA. I could write all night about hearing loss and ear problems–nose and sinus problems too! Good luck with your decision, and enjoy the coming week! Best Wishes, @Peggy