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Oct 13, 2017 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Here is a question for those going to the seminar at NJH: Is there any evidence or studies being done or even anecdotal evidence that show following the suggested guidelines to avoid NTMs makes a difference in the rate of reinfections? Jan

Aug 16, 2017 · Remembering KateMN - losing a virtual friend hurts too in MAC & Bronchiectasis

I just wanted to give my condolences to Katherine’s family and to the Connect family. Katherine was there to steer many of us toward taking our health into our own hands and fighting for 2nd opinions from experts and getting the medical attention we needed. She was a pro at saying the right thing to so many people especially the newcomers but doing it with love and grace. I admire her willingness to give of herself even when she was fighting her own battles. She was a wonderful lady and will be missed greatly! And now, thank you to the mentors for carrying on where she left off. Jan

Aug 13, 2017 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@laural856. I’ve been taking Jarro-Dophilus EPS as recommended by Dr. Huitt at NJH. I take 2 in the am and 2 at dinner. They are room temp stable and have 5 billion per capsule. They also have a coating that is suppose to make the capsule get past the stomach and into the intestinal tract. So far they have been doing the trick but I’ve only been on the antibiotics for 2 months. Jan

Aug 4, 2017 · 'PINK SLIME' Data Base in MAC & Bronchiectasis

If I post here about the pink-slime will it get to Dr Falkinham? We have it also. We are on a well. Lexington, SC. Jan

Jul 20, 2017 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Does anyone have the list of tests a person should be getting routinely if they are on the Big 3 antibiotics? Thanks. I have seen them several times on here but I didn’t save them, unfortunately. Jan

Jun 24, 2017 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

I just looked at the sheet I got from NJH and the baby bottle sterilizer is not listed so they must have revised the sheet. These are the methods listed: boiling, microwave steam bag, isopropyl alcohol, and hydrogen peroxide. Jan

Jun 24, 2017 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Terry, I was at NJH in May and was told to clean my Aerobika once a day. Use it, disassemble it so that it will dry again, use ii again and then clean it. They said The sterilizing should be done once a week. I use the microwave bags for that. I don’t use saline though so I don’t know if this process applies to your situation. Jan.