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Posts (16)

Mon, Feb 11 9:22pm · Craniopharyngioma in Brain Tumor

BTFC is comprised of patients, caregivers and medical advisor. Everyone gathers for welcome, introductions, announcements, then breaks into 2 groups (patients and caregivers). Physician spends time with each group. It’s a nice blend of seasoned patients and those newly diagnosed. From time-to-time a special speaker may be present.

Sun, Feb 10 8:08pm · Craniopharyngioma in Brain Tumor

Hi! Yes, we do attend the Brains Together For A Cure as often as schedules permit. While we drive from Minneapolis to attend, another patient makes a round trip from northwestern Minnesota. Check-out BrainsTogetherForACure.org for meeting information and event updates. Next meeting is Sat, Feb 16th from 10am-Noon at ACS Hope Lodge in Rochester MN

Sun, Feb 10 8:03pm · Craniopharyngioma in Brain Tumor

Wonderful new! Glad it went well.

Tue, Jan 22 8:47pm · Craniopharyngioma in Brain Tumor

Hi! Craniopharyngioma patients and family members are welcome at the Brains For A Cure support group at Hope Lodge, Rochester MN, if you live near.

Thu, Jan 17 8:55pm · Embryonal Brain tumor in Brain Tumor

Brains Together For A Cure Meetings

Thu, Jan 17 8:51pm · Embryonal Brain tumor in Brain Tumor

Sorry, the 3rd Saturday of every month, 10am-noon. Next meeting is Sat, Jan. 19th.

Thu, Jan 17 8:05pm · Embryonal Brain tumor in Brain Tumor

Our daughter was diagnosed with a rare (Craniopharyngioma) brain tumor at 27 yrs, and is post craniotomy (4yrs) and Proton Beam radiation.
As grateful as we are for the excellent care and treatment she’s received since diagnosis, it’s not easy seeing your child, regardless of age, go through the changes and loss of dreams due to brain tumor. In fact, it sucks!
I’m glad you found this Connection. If you live in MN, the Brains Together For A Cure support group for patients and caregivers meets monthly at Hope Lodge in Rochester. It’s a great group of welcoming, experienced people and physicians.

Oct 27, 2018 · Life: How do you not let a brain tumor take over your life? in Brain Tumor

It’s a struggle. Found if we only focus on what we know today … one day at a time … is the best we can do. This is a journey not a race. Pace yourself.