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Posts (16)

Dec 31, 2016 · Anyone here dealing with peripheral neuropathy? in Neuropathy

@andilynn: I was not aware of the page on PN on Facebook. I will check it out today. I, too, have had PN for 4 years in both feet and to my calf on my left let but just above my ankle on my right leg. The left is far more painful and lets me know it’s there constantly. I’m interested in what triggered your PN. Mine was from an extended hospital stay wherein I was unable to get out of bed for 42 days.
I look forward to hearing from you. I am allergic to drugs so I take nothing. I was given lidocaine cream but it did nothing.
Trish D

Dec 31, 2016 · Anyone here dealing with peripheral neuropathy? in Neuropathy

@mari I wasn’t aware that FB had a page on Peripheral Neuropathy. I will check it out. I have had PN for four years. I had an extended hospital stay and was unable to get out of bed. The result was PN in both feet up to my calf in my left leg and just to my
ankle on my right foot. The numbness is constant the pain however, comes and goes. Sometimes sharp and sometimes shockingly
hard. But it is hear and gone almost immediately. I cannot take drugs of any type so I don’t accept the offers of Rx. I just live with it.
It does become part of your life and I guess I tend to just ignore it. How are you coping? I’m always interested in how others got this
and why.
Trish D

Dec 21, 2016 · Xarelto in Heart Rhythm Conditions

@martin:
Thank you Martin for all your good advice. My oncologist is a hematologist, that is why I saw him. My original oncologist has retired. I can’t take pain medications so I refuse the prescriptions. You make many excellent suggestions. I am going to see my nephrologist and one other Doctor who is a vascular surgeon. I am still seeking answers as to why I have such excruciating pain when I must go off Xarelto. No one seems to be aware of this. It is frustrating to say the least. I thank you for your concern and most importantly your suggestions. I will keep you informed. Merry Christmas
Trish D

Dec 14, 2016 · Xarelto in Heart Rhythm Conditions

@ predictable: Again you are right on mark. While I’ve never had a spinal tap, I have had back surgery 10 years ago. I also had/have scoliosis (to the left side) I read what you mentioned on Drugs.com a few weeks ago. That was what got me thinking about something else needing the Xarelto besides what I take it for (which is PE, 4 Blood clots over the years and A-Fib. The Oncologist advised, today, that I might try taking Aleve when I must go off the Xarelto for a medical procedure or surgery. Just take “one” was his advice. He thinks that might help me with the pain or stop the on-set of same. This is like a puzzle. They (3 of my Doctors) thought the pain might be from my Abdominal Aortic Aneurysm (Triple A) an ultra sound showed no new growth. Because my PCP ordered the ultra sound my appointment with the vascular surgeon was cancelled by their office when in receipt of the results. The only reason I saw my Oncologist was for a yearly visit. My regular Oncologist retired so a new man took over my case. I am a 7 year survivor of colon cancer so I am released from care except for blood tests now and then. I certainly will look in to seeing my vascular surgeon and probably a nephrologist. Sometimes I feel that I am reaching for a star. While I am in my 80’s I am active and healthy otherwise. Some Doctors might look at me as just an “old person.” I sincerely hope note. I’ll keep making noise in my corner and keep searching for a result
for it may help others who never realized the importance of being their own advocate. Again my thanks for all the support I have received here on this site. My anxiety is far less than it was formerly.
Trish D

Dec 14, 2016 · Xarelto in Heart Rhythm Conditions

I saw my oncologist today. He knows of nothing in Xarelto that might cause this, especially the fact that it happens only
when I go off it. He, too, felt it might be something that needs the Xarelto other than what it is used for. I do have CKD
and lesions on my kidneys and liver too numerous to count so we just might have hit on something with your post. I
never thought about something else needing the Xarelto. The pain is in my lower back near my waist and it is so
severe and I will and do take narcotics for the pain. Even though they render me useless I only need them for
3-4 days. By that time I am a dish rag. I cannot believe how they knock me out and cause me not to even remember.
That is why I am seeking answers. I don’t want to keep going off the Xarelto every six months for a procedure to be
done. Medication should not cause more pain. I cannot tell you how much your posts have helped to add other thoughts or reasons
why this is happening I appreciate everything anyone can suggest. You made the most sense. Something I never
thought about, so thanks predictable.
Trish D

Dec 13, 2016 · Xarelto in Heart Rhythm Conditions

@yoanne: Hello: I appreciate your response to my problem more than you know. I am trying to bring awareness of this problem about because no one in the medical profession seems to have heard of it before. The pain is excruciating, when I have to go off the Xarelto. I now need one more procedure and a small surgery. I fear going off the drug because the pain (on three occasions) sent me to the ER. All I’m given are opioids. I have an extremely low tolerance to them and usually refuse the Rx. I cannot function on even a quarter of a10 mg pill. I’d rather not feel like that so I refuse the Rx. I am on 15 mg of Xarelto now and have been for the past 3 years.
Tomorrow I’m seeing a oncologist/hematologist because I have not had my blood tested this year. I felt safer on Warfarin even though I suffered 4 blood clots and a PE, because there was always something to help me. Thanks for your info. I truly appreciate it. I have
heard of many others suffering from back spasms while on Xarelto, I believe it was in Drugs.com under Xarelto and back pain. If I come across that link again I will surely forward it on to you.
Trish D

Dec 13, 2016 · Xarelto in Heart Rhythm Conditions

@ Kanaazpereira: My problem is that I only have the back pain when I must go off the Xarelto for medical procedures. It’s very frustrating. I’m trying to find others who have had this dilemma. Thanks for the Link. I’ll go there now.
Trish D

Dec 13, 2016 · Xarelto in Heart Rhythm Conditions

Hi @predictable: I appreciate your “butting in” as you say. I appreciate anyone who is willing to share their lives with others so that they may help someone. I was on warfarin for many years but it failed me. After getting two more blood clots my oncologist decided to take me off the warfarin and put me on Xarelto. I so fear the side effects, as you do. I am in your age group and don’t like having to take drugs with such severe side effects. Thanks for you info. I did not know there was no proven antidote at the time I was put
on Xarelto, there was so much more going on with the blood clots coming up again.
Trish D.