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Dec 29, 2016 · Exocrine pancreatic insufficiency (EPI) in Digestive Health

Thank you for this excellent information. I currently live in Central Florida, The Villages, a massive retirement community. However, it is likely I will be moving to Amelia Island in April, so your suggestion to go to the Mayo Clinic in Jacksonville is a great resource.

I was having urgent diarrhea in the middle of the night 3-4 times a week. Earlier this year after seeing my family doctor and a urologist I finally got to GI doctor. He did a colonoscopy and ordered some stool tests. All the tests came back normal except for 1, the elastase was severe. I have never had GI issues before this, I am 66.

Once I went on 12 Zen Pep a day the urgent diarrhea virtually stopped making the doctor feel as though he had the correct diagnosis. However, I am still not sure as I never had any of the conditions (pancreatitis or alcohol issues or cystic fibrosis) which seem to cause it.

My concern is my weight as I am the lowest weight since being a teenager and I cannot gain any weight no matter what I eat. I am also anemic so I just started taking iron supplements. Also, I have had Cat scans, MRI’s and endoscopy procedures and thankfully no cancer has been detected.

I am really appreciative of this website as this has been my only opportunity to discuss my EPI issue with anyone who understands it.

Dec 28, 2016 · Exocrine pancreatic insufficiency (EPI) in Digestive Health

Wow, totally different. I have no pain after eating, even larger meals. Sorry.

How about your weight? Did you lose weight? Etc.

I have no idea how I got EPI. Never have had pancreatitis or nor was I a heavy alcohol drinker.

I read someplace that only 8 out 100,000 have EPI. Knowing that, I am not certain how much experience any GI doctor could have.

Dec 27, 2016 · Exocrine pancreatic insufficiency (EPI) in Digestive Health

It seems as some people have different instructions from their doctors regarding the diet they should be on. I was diagnosed with EPI earlier this year. The PERT that I use is Zen Pep, 40,000 units, I take 12 per day. Before being diagnosed I lost about 20 pounds, from 200 to 178, had severe & urgent diarrhea 3-4 nights per week. My doctor wants me to gain weight back and said it was OK to eat fats as long as I take the pills. I rarely have episodes of diarrhea now, maybe once a month. I have not gained any weight back, but I have not lost any more either. I would like to hear about other people’s recommendations for diet.