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Posts (13)

Dec 27, 2016 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

I finially got a call from mission infectious disease in asheville nc today and i have an appointment this thrusday evening. I sure hope they treat me better with mai than asheville pulmonary did my wife , they act like its nothing to worry about .

Dec 18, 2016 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

I feel that it has more to do with this disease because i had a couple lympnodes that were 1cm on its short axis and they have decreased in size but i still dont know why.

Dec 17, 2016 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Thanks very much and lets hope all of us have some better days ahead. I would like to ask, for my first two years of this disease i thought i was litterally going to die. But now , i still have the fatigue , lots of sputum , my bones hurt , sometimes my skin hurts and i dont feel well most of the time but my breathing has gotten much better . why would my breathing get any better without treatment ?

Dec 16, 2016 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Hi @katemn , I have seen my new family doctor and got a referal to infectious disease doctor in asheville , waitting for them to call with appointment and my wife goes to pulmonary doctor on december 28. Thanks for asking!!

Dec 9, 2016 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

I want to say THANKS for all the information and sound advice . It helps just to have others that do understand and don’t doubt what you say !!!

Dec 9, 2016 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

My wife and I both have disability lawyers. My wife’s doctors are finally treating her disease as serious as it is, which is aassuring . I see my new family doctor today with high hopes of being referred to the proper specialist . I almost forgot , my disability lawyer told me I should have my hearing in the next two months . I pray they do what my health suggest and that is grant me disability .

Dec 7, 2016 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Thank you , why are my post not being placed where I reply ?

Dec 7, 2016 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Thanks for the information and I do understand. But I was diagnosed with cold by the doctors and I knew they was wrong because the symptoms didn’t fit and the medication didn’t help. So, how do I leave it all to the doctors . I would tell them they were wrong and I could tell , all it did was make them mad .