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Posts (18)

May 5, 2017 · Scoliosis - Introduce yourself and meet others in Spine Health

I just had a L4-L5 fusion and two spacers last week as I have degenerative disc disease. In your recovery from your surgery did you have horrible hip pain when walking? I know the L4 nerve is responsible for the pain I was having in that area before the surgery but it is so intense now. Does it go away? How long did it take before you saw relief

Apr 1, 2017 · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

I live in Montana. I originally had the harrington rod done at the Mayo Clinic in Minnesota 39 years ago. I have never had any issues with the rod at all. It’s those vertebrae below that have taken all the jarring and twisting all these years that have the problem.

Mar 31, 2017 · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

I had a nerve block on the L4 nerve yesterday 3-30 and for the first time in 6 years I was pain free. The neurosurgeon wanted to pin point the exact cause before he does surgery which I am thankful for. Now waiting to see when to schedule surgery. He will be doing the one where they cut away bone to make the channel bigger. He said he doesn’t want to fuse because already having the Harrington rod in the main part of my back will just send us on a slippery slope to hell.

Mar 9, 2017 · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

@jimhd, I’m so sorry for your pain and the depression you have gone thru. I have been suffering with pain in my lumbar spine and was prescribed gabapentin 6 years ago when I had my first pinched nerve. There is nothing like nerve pain. I have had a pinched nerve twice now and both times, I was so close to taking the entire bottle of gabapentin cause I just couldn’t handle it anymore, I didn’t but right now I’m still suffering from after affects and now have degenerative disc disease below my Harrington Rod. I get to see the neurosurgeon on the 22nd of this month as I have tried all options and am looking at surgery. No one understands chronic pain unless they truly have experienced it. It’s awful to go thru.

Mar 7, 2017 · Harrington Rod and lower back pain in Spine Health

Thank you. I don’t have any issues with the rod itself, but its the lower lumbar spine that is the problem with degenerative disc disease. I don’t think I’m different than anyone else that has this problem. I’m waiting for a neurosurgeon to review my CT scan, my SPECT CT scan and my MRI to make a decision on what to do. I just have to continue to be patient and hope for the best. I’m just getting grouchy as I’m in pain 24/7 where before I could sit or lay down and relieve the pain and that doesn’t happen now.

Feb 23, 2017 · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

This is @sutherlin, so frustrated. Have had a CT scan back in March of 2016 that showed I have significant degenerative disc disease (DDD) in L2-L3 and moderate DDD in L4-L5. My harrington rod from scoliosis surgery in 1977 ends at the L1. I just had a SPECT CT scan and they said the facet joints didn’t look inflammed but the two spots I mentioned were, so they insisted I get an MRI and I was told that the rod does cause some distortion but I made it thru the MRI and was told by the tech that they weren’t optimal but would do. So the PA from the pain center I’ve been going to calls and tells me that because of the rod ending L1 that they couldn’t see what is going on in the L2-L3 but there is some compression of the nerve in L4-L5, really, like the MRI did no good and I fought not having it because of the distortion and the fact I’m claustraphobic but made it thru without drugs. There is nothing wrong with the discs in the fusion of the rod, but they keep pushing me off about the pain, like I’m imagining it or something. I’m like everyone else with DDD, had the shots, physical therapy, chiropractic, nothing works, so now they are sending me to the neurosurgeon and I’m hoping that this gentleman can assess and do something to relieve my pain. There are other options and I know it’s surgery but let’s do something. I’m even going to suggest if he seems to be hesitant to contact a neurosurgeon at the Mayo Clinic where my surgery was performed to see if maybe they can’t brainstorm.

Feb 22, 2017 · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

Reading everyone’s posts about chronic pain and I have degenerative disc disease in the L2-L3 and L4-L5 but have a Harrington Rod in my back that was in for scoliosis almost 40 years ago and I believe the reason I’m in so much pain and in those areas is because L2-L5 are not part of the fusion and are taking the brunt of everything. I just had a SPECT CT Scan which confirmed the inflammation and now I’m having an MRI done today because the only thing left is surgery. What kind I don’t know, waiting to see what the MRI says and speak with the surgeon. Steroid shots, don’t work, did chiropractor stretching table, ozone shots, numbing shots and nothing helps. Guarantee you I’m over the pain. I can’t even walk a block and I need to sit but anymore sitting doesn’t even ease the pain. Can’t take it much longer. Hopefully, they will figure something out, but I was told the rod will cause some distortion in the MRI readings and I can assure you, because I’m doing this without drugs and being claustraphobic that if they tell me they couldn’t tell for sure because of the distortion, this girl is going to come uncorked!!!!! I wish I could find something to at least ease the pain, but so far nothing. I had my surgery done at the Mayo Clinic in Minnesota in 1977. I don’t think that I would last this long or something or they just didn’t know what the long stretch with this rod would do. I would be dead if I hadn’t done the surgery as the curve was large enough to be shoving organs out of place and giving me a heart murmur. Hope everyone with chronic pain finds the relief they are looking for.