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Posts (29)

Dec 27, 2017 · Acceptance in Neuropathy

I don’t know if it’s so much denial as learning to respect our own limitations. Sometimes you can cause a lot of damage trying to do things that are no longer physically appropriate for you. That said, giving up completely isn’t the right answer either, so somewhere in the middle is the balance of keeping as active as you can without overdoing it so you feel worse.

@keeptrying, not sure what your limitations are but have you considered equine therapy if you like to ride? My cousin has MS and even when her condition was very severe (she was wheelchair bound in her 20’s), she was able to do equine therapy. She considers it a big part of why she is able to walk today. Also, just being around the horses was really helpful because it kept her spirits up. For some of us, a dose of “barn smell” is what we need to feel at home again.

Best wishes to all of you for a safe and healthy New Year.

Dec 22, 2017 · Fighting Holiday Blues Food Problems in Diabetes/Endocrine System

This is a great plan, @retiredteacher. Moderation is the key in most things, diabetes included!

Dec 19, 2017 · High TSH and High T3 in Diabetes/Endocrine System

Hi – Longtime Hashi’s patient here (20+ years). Because it’s auto-immune, during the early stages, the thyroid can “storm,” meaning that it will have periods of producing large amounts of hormone and other periods of producing very little. You may want to ask your doctor to recheck again in a couple of weeks to see if your levels change. I can’t say for sure that it’s not related to tumors, but from what I was told when I asked that question, it’s fairly rare.

I assume that they actually found antibodies in your bloodwork and that’s how you know it’s Hashimotos? If not, they maybe need to do some testing for other conditions as well, as it would be unusual to be hyperthyroid and that tired, although it is possible depending on what else is going on with your body.

Hoping that you are able to figure it out and start feeling better soon. I know what that feels like and it’s definitely not fun.

Dec 19, 2017 · Depression and taking medicine for years in Depression & Anxiety

Hi @theotherone. If you haven’t tried it before, please consider working with a therapist who has been certified to work with trauma. I too had a difficult childhood, and spent about six months last year working with a really good counselor who really knew how to address childhood trauma. It was not an easy process and it was difficult work, but it has really helped me a lot. Best wishes on your journey.

Dec 18, 2017 · Thyroid and Body Pain in Diabetes/Endocrine System

I saw my PA on Friday and she did the test for fibro. I basically don’t have any of the trigger points, so it appears that’s not it. (She said we can leave it “on the table” but probably not the cause). She started me on Cymbalta and an anti-inflammatory medication that I can use when it’s particularly bad, so at least I have some treatment options for now. Next step is an EMG test for nerve function, focused on my legs to see if there is a lower back problem or something.

She also tested to see if I have any numb spots on my feet due to neuropathy and luckily, I do not, and my balance isn’t effected.

The process of starting on Cymbalta has been a bit interesting – not my first go-round with anti-depressants, so it’s familiar but not much fun. At least we have a plan for now and hopefully the Cymbalta will help. So far, it’s not doing much for the pain but it’s only been a few days and I understand it can take 4-6 weeks to really show an effect.

Dec 15, 2017 · Thyroid and Body Pain in Diabetes/Endocrine System

Hi @parus, I totally get it. I’ve had Hashimoto’s Thyroiditis for over two decades now, so my doc / PA and I review the numbers together and decide when we will change my meds and when we won’t. It took me a long time to find a practice where they would listen and treat me as a partner in my own healthcare, but it was worth the effort.

One other thing I want to mention is that there is a supply issue with NatureThroid in the U.S. right now and only the 65 mg seems to be available. I don’t know if that was factor in changing your meds, but it was an issue with mine.

Perhaps you should try a new practice for your primary care and see if you can find someone who will be better to work with? It never hurts to get a second opinion. One thing I did was to read online reviews from patients to help find someone who would listen and treat me with respect rather than talking to me like a child (which can be a problem with some docs).

Best wishes – thyroid disease and all its many symptoms sure can make you crazy sometimes.

Dec 15, 2017 · Thyroid and Body Pain in Diabetes/Endocrine System

Good point @johnbishop and definitely something to think about. I’m going to try again with my regular doc this afternoon and see what they say. The challenge with a topical treatment is there are times when the pain is over pretty much my entire body – it’s almost flu-like symptoms the way my whole the body aches.

If it was just the burning in my feet and tingling in my hands, that’s mild enough that for now I can ignore it most of the time. (It’s a nuisance but not terrible). The worst is when I get up in the morning. I’m so stiff I can hardly move and everything hurts for a good hour or more, unless I take OTC pain meds, which I’m trying not to do too often.

My chiropractor recommends CBD oil, which I’m also thinking about, but not sure if that’s the route I want to go at this point either.

Dec 15, 2017 · Thyroid and Body Pain in Diabetes/Endocrine System

Hi John! I actually used to underwrite Pharmacists’ Professional Liability insurance so I know all about compounding pharmacies and PharmD’s. They are great and can be really very helpful especially for unique situations like this.

We did have a compounding pharmacy here in town but they were shut down by the FDA for some illegal practices. (Not sure exactly what happened, but I read that they were making things they should not have been). I think there is another compounding pharmacy that opened nearby, so I could probably use them. The challenge will be getting a prescription from a doc that seems to think it’s yet another symptom from my various other issues and not to be taking all that seriously.

Thanks again for your help.