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Mar 26, 2018 · Woozy feeling in Hypertrophic Cardiomyopathy (HCM)

Glad you feel less woozy. I’ve been in Verapimil at least 20 years. Started on 120 mg and bumped to 240 mg in my early 50s. I’ve tolerated it well but recall feeling woozy and disoriented for a few weeks when I made the shift. I run a low BP and doctor monitored me closely until body caught up. Hope you get some answers.

Mar 20, 2018 · HCM-ers: Introduce yourself or just say hi in Hypertrophic Cardiomyopathy (HCM)

@ronaldpetrovich please see my note in this thread about coming to Mayo.

Mar 20, 2018 · HCM-ers: Introduce yourself or just say hi in Hypertrophic Cardiomyopathy (HCM)

@tkterrell just a note of reassurance. I’m 62 and had symptoms in third grade when i was 8 years old and kept getting short of breath on the playground. You will learn to adjust, your body will support you and there are treatment options being tested and developed all the time. I self-referred myself to Mayo in Rochester. 10 years ago became they specialize in HCM diagnosis and treatment. I go every few years to monitor the status of my condition. Good luck. Let me know if I can be a sounding board for you. I is shocking and scary at first and seeing that others live a normal life will help. Gwen

Mar 20, 2018 · HCM-ers: Introduce yourself or just say hi in Hypertrophic Cardiomyopathy (HCM)

Hi Ronald. I have HCM, diagnosed 30 years ago, symptoms started as a child but no one knew what was wrong. I’m coming to Mayo Rochester April 2-5. I’d enjoy a chance to meet you and hear about your experience. I’m also a writer and want to get more involved on social media. I have open time on Wednesday April 4 for lunch or available all afternoon. Could we meet? Thanks Gwen

Mar 20, 2018 · Tips for first dr visit and tests/appt schedules in Visiting Mayo Clinic

Hi Rosemary, I go to Mayo in Rochester too! I’m go there for a series of tests every few years for a heart condition. The labyrinth is embedded in the floor in the chapel. I think I’m recalling that right! I also enjoy sitting in Gonda atrium listening to the live music. Gwen

Mar 19, 2018 · Tips for first dr visit and tests/appt schedules in Visiting Mayo Clinic

Have been a patient for 13 years and travel for out of state. Always impressed with the attention to detail, signage, and positive energy. Lots of volunteers to guide you along the way. Stop in the chapel or walk the labyrinth.