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Nov 8, 2016 · What is the recovery like following septal myectomy? in Hypertrophic Cardiomyopathy (HCM)

2:30 AM – 7 days post surgery

Colleen and the group – thanks for your prayers, thoughts, and support. I am just back home (5PM, Monday, Nov 7) after having surgery Tuesday morning, November 1 at Mayo Rochester. From everything I have heard, read, and experienced – it sounds like it was a rousing success! Everything the nurses have said to me is that I am on the front end of any of the recovery charts. I do feel better now (7 days post surgery) than I was before the surgery. I am hurting but also healing and feeling pretty good. I went into ICU after Surgery, starting walking the next day and day 3 I moved out of ICU to a ward on floor 5 and was able to walk there with my family and the nurses carrying my stuff! I walked a lot which helped with the chest congestion, lung expansion, and just getting the body woken up in general. I got all my final drain tubes and connections off by Saturday AM so that by Saturday and suppertime we had moved out of the hospital into a hotel across the street and walked over to supper at a nearby restaurant. By the time I got back to my hotel room I was whipped. I will write more shortly – but wanted to say that info I found here helped me to keep a great attitude, appreciation for the nurses, doctors, and staff which made an extremely quick recovery so far.

I am pooped right now – I just got about 3 hours of sleep in and was waiting for the next pain med window before trying to go back for a little more sleep.

Encouragement for recovery:

Listen and respond positively to the work the Drs, nurses, staff give you. Get daily goals and work until they are done before giving up for the day
Get up and walking as much and as soon as you can
Try to get your body waken up by starting to eat and drink what you can
Wean off big pain meds when you can – but not before you need it! Pain is an indication of healing as well You need to heal and pain meds help
Keep positive! Nobody likes a downer – and the stories everyone has can get overwhelming – focus on the positive aspects of each day
Get happy people to visit you and get you to start laughing!

All for now. Thanks for the great group.

Dave @lamborama

Oct 25, 2016 · HCM-ers: Introduce yourself or just say hi in Hypertrophic Cardiomyopathy (HCM)

Hi, Dave here. I am 56 and was diagnosed with HCM last year while dealing with A-Fib. Looking back now my doctors think my A-Fib (last year), High Blood Pressure (diagnosed 6 years ago), and mitral valve regurgitation (8 years ago) are all from the HCM. I was cardioverted last year to get back in rhythm but have continued with severe fatigue and pressure when doing activities. At my annual A-Fib check they did more testing (Echo, Stress, and MRI) and said my HCM has increased to being obstructive. I am scheduled next week (10/31) for pre-op and then a septal myectomy on 11/1. I am looking forward to feeling better (not relishing the thought of surgery) but this site has helped me to hear the results many of you have received. Thanks for the encouragement and the updates! I plan to do my part as well going forward to help others facing this prospect. Dr. Schaff is my surgeon and I am very pleased with what I have read and heard from all of you regarding the good care at Mayo. Thanks, Dave.